Robert H. Lurie Comprehensive Cancer Center, Northwestern University, Chicago, Illinois.
Department of Medicine, Section of Health Promotion, University of Illinois at Chicago, Chicago, Illinois.
Pediatr Blood Cancer. 2019 Feb;66(2):e27516. doi: 10.1002/pbc.27516. Epub 2018 Oct 26.
Adolescent and young adult (AYA) oncology patients (ages 15-39) have been identified as a group with healthcare disparities including gaps and challenges in diagnosis, access to care, research, clinical trial participation, and cure rates. Like other patient groups with cancer or other chronic illnesses, disparities can lead to poor future health and outcomes, which is a well-recognized concern within the AYA population. Cancer is the leading disease-related cause of death in this age range. Numerous interested groups including the National Cancer Institute have met to address the research and cancer care needs of AYAs. This review highlights how these gaps in care during and after treatment can affect future health of this population of patients. Access to care, models of survivorship care, and lack of provider education are discussed. Survivorship care and use of guidelines, and promotion of psychosocial support and health behaviors during treatment and beyond are essential to optimizing future health of AYA patients.
青少年和年轻成人（AYA）肿瘤患者（年龄 15-39 岁）被认为是一个存在医疗保健差异的群体，包括在诊断、获得医疗服务、研究、临床试验参与和治愈率方面存在差距和挑战。与其他患有癌症或其他慢性疾病的患者群体一样，差异可能导致未来健康状况不佳和结局较差，这是 AYA 人群中一个公认的问题。癌症是这个年龄段与疾病相关的主要死亡原因。包括美国国家癌症研究所在内的许多相关团体已经开会讨论 AYA 的研究和癌症护理需求。这篇综述强调了治疗期间和治疗后这些护理差距如何影响该患者群体的未来健康。讨论了获得医疗服务、生存护理模式以及提供者教育的缺乏。生存护理和使用指南，以及在治疗期间和之后促进心理社会支持和健康行为，对于优化 AYA 患者的未来健康至关重要。
