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针对患有埃勒斯-当洛综合征(EDS)且伴有体位性直立性心动过速综合征(POTS)的患者的职业治疗干预措施。

Occupational Therapy Interventions for Clients with Ehlers-Danlos Syndrome (EDS) in the Presence of Postural Orthostatic Tachycardia Syndrome (POTS).

作者信息

Levine David, Work Brittany, McDonald Susan, Harty Nicole, Mabe Carolee, Powell Alison, Sanford Graceline

机构信息

Department of Physical Therapy, The University of Tennessee at Chattanooga, Chattanooga, TN, USA.

Department of Occupational Therapy, The University of Tennessee at Chattanooga, Chattanooga, TN, USA.

出版信息

Occup Ther Health Care. 2022 Jul;36(3):253-270. doi: 10.1080/07380577.2021.1975200. Epub 2021 Sep 14.

DOI:10.1080/07380577.2021.1975200
PMID:34520307
Abstract

Postural orthostatic tachycardia syndrome (POTS) is often seen in clients with Ehlers-Danlos syndrome (EDS), primarily hypermobile EDS. Research has shown clients with EDS and POTS may experience limitations affecting not only their physical function, but also their social, emotional, and mental well-being. Using a client-centered approach, occupational therapy practitioners assess health, well-being, symptomatology (fatigue, muscle pain, dizziness, etc.), participation and engagement in occupation, and provide interventions to improve quality of life. This paper will address occupational therapy interventions to treat common symptomatology for clients with EDS in the presence of POTS, including environmental modifications, use of adaptive equipment and orthoses, exercise and fall prevention, energy conservation and pacing, sleep hygiene, and routine and habit development to promote optimal engagement in meaningful occupations.

摘要

体位性直立性心动过速综合征(POTS)常见于患有埃勒斯-当洛综合征(EDS)的患者中,主要是可弯曲型EDS。研究表明,患有EDS和POTS的患者可能会受到各种限制,这些限制不仅影响他们的身体功能,还会影响他们的社交、情感和心理健康。职业治疗师采用以患者为中心的方法,评估患者的健康状况、幸福感、症状(疲劳、肌肉疼痛、头晕等)、参与职业活动的情况,并提供干预措施以提高生活质量。本文将探讨针对患有EDS且伴有POTS的患者常见症状的职业治疗干预措施,包括环境改造、使用适应性设备和矫形器、运动和预防跌倒、能量节约与节奏控制、睡眠卫生,以及制定日常活动和习惯以促进患者更好地参与有意义的职业活动。

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