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[俄罗斯联邦甲状旁腺疾病登记处]

[Registries of parathyroid glands diseases in the Russian Federation].

作者信息

Mokrysheva N G, Kovaleva E V, Eremkina A K

机构信息

Endocrinology Research Center.

出版信息

Probl Endokrinol (Mosk). 2021 Aug 19;67(4):4-7. doi: 10.14341/probl12803.

Abstract

The most important and effective way to organize nationwide the healthcare, as well as monitoring and routing for patients with endocrine diseases, is the creation of an unified medical record (Endocard). The Endocard is also aimed at maximizing the opportunity for professionals and researchers on various scientific issues. Registries are the potential informational and analytical platform to achieve this goal. They include the basic information on the epidemiological and clinical features of the most severe diseases such as diabetes mellitus. Given the lack of large-scale epidemiological data on the parathyroid glands pathology - primary hyperparathyroidism and hypoparathyroidism - the registers of these diseases that collects a common dataset and clinician and patient reported outcomes are of particular interest.

摘要

在全国范围内组织医疗保健以及对内分泌疾病患者进行监测和转诊的最重要且有效的方法,是创建统一的病历(内分泌疾病病历)。内分泌疾病病历还旨在为专业人员和研究人员就各种科学问题提供最大的机会。登记处是实现这一目标的潜在信息和分析平台。它们包括有关最严重疾病(如糖尿病)的流行病学和临床特征的基本信息。鉴于缺乏关于甲状旁腺病理学——原发性甲状旁腺功能亢进和甲状旁腺功能减退——的大规模流行病学数据,收集共同数据集以及临床医生和患者报告结果的这些疾病登记处尤其令人关注。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3186/9753803/e82a301cb8d9/problendo-67-12803-g001.jpg

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