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贫困与临终时贫困状况的影响:一项批判性综述。

The impact of poverty and deprivation at the end of life: a critical review.

作者信息

Rowley Jane, Richards Naomi, Carduff Emma, Gott Merryn

机构信息

End of Life Studies Group, School of Interdisciplinary Studies, University of Glasgow, Glasgow, UK.

Marie Curie Hospice Glasgow, Glasgow, UK.

出版信息

Palliat Care Soc Pract. 2021 Sep 12;15:26323524211033873. doi: 10.1177/26323524211033873. eCollection 2021.

Abstract

This critical review interrogates what we know about how poverty and deprivation impact people at the end of life and what more we need to uncover. While we know that people in economically resource-rich countries who experience poverty and deprivation over the life course are likely to die younger, with increased co-morbidities, palliative care researchers are beginning to establish a full picture of the disproportionate impact of poverty on how, when and where we die. This is something the Covid-19 pandemic has further illustrated. Our article uses a critical social science lens to investigate an eclectic range of literature addressing health inequities and is focused on poverty and deprivation at the end of life. Our aim was to see if we could shed new light on the myriad ways in which experiences of poverty shape the end of people's lives. We start by exploring the definitions and language of poverty while acknowledging the multiple intersecting identities that produce privilege. We then discuss poverty and deprivation as a context for the nature of palliative care need and overall end-of-life circumstances. In particular, we explore: total pain; choice at the end of life; access to palliative care; and family caregiving. Overall, we argue that in addressing the effects of poverty and deprivation on end-of-life experiences, there is a need to recognise not just socio-economic injustice but also cultural and symbolic injustice. Too often, a deficit-based approach is adopted which both 'Others' those living with poverty and renders invisible the strategies and resilience they develop to support themselves, their families and communities. We conclude with some recommendations for future research, highlighting in particular the need to amplify the voices of people with lived experience of poverty regarding palliative and end-of-life care.

摘要

这篇批判性综述探讨了我们对于贫困和匮乏如何影响临终者的了解,以及我们还需要揭示哪些更多内容。虽然我们知道,在经济资源丰富的国家,那些在生命历程中经历贫困和匮乏的人可能寿命较短,且合并症增多,但姑息治疗研究人员正开始全面了解贫困对我们死亡的方式、时间和地点所产生的不成比例的影响。这一点在新冠疫情中得到了进一步体现。我们的文章运用批判性社会科学视角,研究了一系列涉及健康不平等问题的文献,并聚焦于临终时的贫困和匮乏。我们的目的是看看能否揭示贫困经历塑造人们生命终点的多种方式。我们首先探讨贫困的定义和相关表述,同时承认产生特权的多种相互交织的身份。然后,我们将贫困和匮乏作为姑息治疗需求的性质及整体临终状况的背景来进行讨论。特别是,我们探讨了:全方位的痛苦;临终时的选择;获得姑息治疗的机会;以及家庭护理。总体而言,我们认为,在应对贫困和匮乏对临终体验的影响时,不仅需要认识到社会经济不公正,还需要认识到文化和象征意义上的不公正。人们常常采用基于缺陷的方法,这种方法既将贫困者“他者化”,又使他们为支持自己、家人和社区所制定的策略及展现出的韧性变得无形。我们最后提出了一些未来研究的建议,特别强调需要放大有贫困生活经历者在姑息治疗和临终关怀方面的声音。

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