Sultan Qaboos University, Muscat, Sultanate of Oman.
Al al-Bayt University, Mafraq, Jordan.
Clin Nurs Res. 2022 Jun;31(5):803-811. doi: 10.1177/10547738211046731. Epub 2021 Sep 24.
Stigma contributes to the burden of individuals and families affected by Sickle cell disease (SCD) and causes delay in appropriate care seeking. The aim of this study is to examine the levels and associations between stigma, social support, self-efficacy, and self-care actions among adult patients with SCD in Oman using a cross-sectional, correlational design. Of the 264 participants, 56.1% ( = 148) were males, with mean age of 30.1 years ( 7.7). Half of the participants were married, and 88.3% had no other associated diseases. The results demonstrate that patients in Oman suffer from health-related stigma. However, social support, self-efficacy, and self-care actions were reported to be high and correlated with several clinical and demographic variables. Based on the results, effective, low-cost interventions such as psycho-educational groups, individual counseling, or group therapies might be developed. They can promote belief in enhanced efficacy and improved SCD adaptation, thereby increasing patient, and provider satisfaction.
耻辱感会加重受镰状细胞病（SCD）影响的个人和家庭的负担，并导致他们延迟获得适当的治疗。本研究旨在采用横断面相关性设计，考察阿曼成年 SCD 患者的耻辱感、社会支持、自我效能感和自我护理行为的水平及其相关性。在 264 名参与者中，56.1%（148 人）为男性，平均年龄为 30.1 岁（7.7）。一半的参与者已婚，88.3%的人没有其他相关疾病。结果表明，阿曼的患者患有与健康相关的耻辱感。然而，社会支持、自我效能感和自我护理行为报告较高，并与一些临床和人口统计学变量相关。基于这些结果，可以开发出有效的、低成本的干预措施，如心理教育小组、个人咨询或团体治疗，可以增强患者的效能感，促进 SCD 适应，从而提高患者和提供者的满意度。
