Bulgin Dominique, Tanabe Paula, Jenerette Coretta
a Duke University School of Nursing, Durham, North Carolina, USA.
b University of North Carolina at Chapel Hill, School of Nursing, Chapel Hill, North Carolina, USA.
Issues Ment Health Nurs. 2018 Aug;39(8):675-686. doi: 10.1080/01612840.2018.1443530. Epub 2018 Apr 13.
The aim of this systematic review was to synthesize the literature regarding health-related stigma in adolescents and adults living with sickle cell disease (SCD). Four domains were identified from 27 studies: (1) social consequences of stigma; (2) the effect of stigma on psychological well-being; (3) the effect of stigma on physiological well-being; and (4) the impact of stigma on patient-provider relationships and care-seeking behaviors. Current literature revealed that SCD stigma has detrimental consequences. Methodological issues as well as research and practice implications were identified. Future research should further examine the impact of health-related stigma on self-management of SCD.
本系统评价的目的是综合有关镰状细胞病（SCD）青少年和成人健康相关耻辱感的文献。从27项研究中确定了四个领域：（1）耻辱感的社会后果；（2）耻辱感对心理健康的影响；（3）耻辱感对生理健康的影响；（4）耻辱感对医患关系和就医行为的影响。当前文献表明，SCD耻辱感具有有害后果。确定了方法学问题以及研究和实践意义。未来的研究应进一步探讨健康相关耻辱感对SCD自我管理的影响。
