Aboaja Anne, Atewogboye Oluwatosin, Arslan Mudassar, Parry-Newton Lucia, Wilson Lindsey
Forensic Service, Roseberry Park Hospital, Tees, Esk and Wear Valleys NHS Foundation Trust, Middlesbrough, UK.
Mental Health and Addictions Research Group, Department of Health Sciences, University of York, York, UK.
Res Involv Engagem. 2021 Sep 25;7(1):67. doi: 10.1186/s40900-021-00310-0.
Patient and public involvement and engagement (PPIE) is recognised as an essential part of health research. In addition to providing an opportunity for patients to shape health research and acquire research skills, in the inpatient mental health setting, PPIE may have additional value in providing meaningful activity and enhancing recovery, as defined using connectedness, hope, identity, meaning and empowerment (CHIME) principles. However, there have been challenges in applying PPIE principles in secure mental health inpatient settings. An eight -session PPIE programme ("Discovery Group") was designed to support patient-led research in a secure mental health hospital. This feasibility study aims to evaluate the acceptability of the programme from the perspective of patients and identify potential outcomes.
A retrospective single-arm post-programme evaluation of Discovery Group was undertaken. Participants attended an evaluation workshop where they were interviewed individually to complete an acceptability questionnaire designed using the domains of the Theoretical Framework of Acceptability. Participants also completed an outcomes questionnaire, which included CHIME-based recovery items, and were invited to share their ideas for programme improvement on posters. Quantitative data were analysed descriptively. Direct content analysis was applied to qualitative data.
In our sample, eight participants attended at least one session of the discovery group with one patient attending all sessions. Most of the participants felt positive about taking part in the group and expressed interest in joining another group in future. All participants experienced some burden from the effort required during group sessions, but a low level of opportunity cost in terms of the extent to which they perceived they had to forfeit benefits to participate in the programme.. Some described the group as effective in helping them learn about research. Of the five CHIME recovery domains, only connectedness was reported as a benefit of the group. The participants valued the opportunity to use their time well and demonstrate that they were undertaking purposeful activity as part of their rehabilitation and recovery.
Discovery Group is a tool to overcome barriers to effective PPIE in research in a secure inpatient mental health setting. The programme has a high level of acceptability among participants and offered several potential outcomes which require testing through further study.
患者及公众参与和介入（PPIE）被视为健康研究的重要组成部分。除了为患者提供塑造健康研究及获取研究技能的机会外，在住院精神卫生环境中，按照关联、希望、身份认同、意义和赋权（CHIME）原则的定义，PPIE在提供有意义的活动及促进康复方面可能具有额外价值。然而，在安全的精神卫生住院环境中应用PPIE原则存在挑战。一个为期八节的PPIE项目（“探索小组”）旨在支持一家安全的精神卫生医院中由患者主导的研究。这项可行性研究旨在从患者角度评估该项目的可接受性，并确定潜在结果。
对探索小组进行了一项回顾性单臂项目后评估。参与者参加了一次评估研讨会，在会上他们接受了单独访谈，以完成一份根据可接受性理论框架的领域设计的可接受性问卷。参与者还完成了一份结果问卷，其中包括基于CHIME的康复项目，并被邀请在海报上分享他们对项目改进的想法。对定量数据进行描述性分析。对定性数据应用直接内容分析。
在我们的样本中，八名参与者至少参加了探索小组的一次会议，一名患者参加了所有会议。大多数参与者对参加该小组持积极态度，并表示有兴趣未来参加另一个小组。所有参与者都因小组会议所需努力而感到有些负担，但就他们认为为参与该项目而不得不放弃利益的程度而言，机会成本较低。一些人将该小组描述为有效地帮助他们了解研究。在CHIME康复的五个领域中，只有关联被报告为该小组的一项益处。参与者重视有机会充分利用时间，并证明他们作为康复和恢复的一部分正在进行有目的的活动。
探索小组是克服安全的住院精神卫生环境中研究有效PPIE障碍的一种工具。该项目在参与者中具有较高的可接受性，并提供了几个需要通过进一步研究进行检验的潜在结果。
