Ohlendorf Johanna, Stasch Luisa, Baumann Ulrich, Konietzny Christiane, Pfister Eva-Doreen, Ernst Gundula, Lange Karin, Sautmann Kirsten, Goldschmidt Imeke
Pediatric Gastroenterology, Hepatology and Liver Transplantation, Hannover Medical School, 30625 Hannover, Germany.
Medical Psychology, Hannover Medical School, 30625 Hannover, Germany.
Children (Basel). 2021 Sep 21;8(9):827. doi: 10.3390/children8090827.
In the absence of widely accepted education standards for parents of children after liver transplantation (LTx), the content and structure of parental training are influenced by health care practitioners' (HCP) individual knowledge and assessment of the relevance of its contents. This study examines the hypothesis that expectations towards training differ between HCPs and parents, and that the quality of parental training affects the job-satisfaction of HCPs. Attitudes towards disease-specific education were assessed by tailor-made questionnaires in HCPs ( = 20) and parents of children with chronic liver disease or after LTx ( = 113). These were supplemented by focused interviews in = 7 HCPs and = 16 parents. Parents were more satisfied with current counseling than HCP. Language barriers and low parental educational background were perceived as obstacles by 43% of HCPs. The quality of parental knowledge was felt to have a strong influence on HCPs job satisfaction. The expectations towards the content of disease-specific education largely overlap but are not synonymous. HCP and parents agreed with regards to the importance of medication knowledge. Parents rated the importance about the meaning of laboratory values and diagnostic procedures significantly higher (3.50 vs. 2.85, < 0.001 and 3.42 vs. 2.80, < 0.001) than HCPs. Parents and HCPs would prefer a structured framework with sufficient staff resources for disease-specific counseling.
由于缺乏针对肝移植（LTx）术后儿童家长的广泛认可的教育标准，家长培训的内容和结构受到医护人员（HCP）个人知识及其对内容相关性评估的影响。本研究检验了以下假设：医护人员和家长对培训的期望存在差异，且家长培训的质量会影响医护人员的工作满意度。通过特制问卷对20名医护人员以及113名慢性肝病患儿家长或肝移植术后患儿家长进行了疾病特定教育态度评估。另外，对7名医护人员和16名家长进行了重点访谈。家长对当前咨询服务的满意度高于医护人员。43%的医护人员认为语言障碍和家长教育背景低是障碍。家长知识水平被认为对医护人员的工作满意度有很大影响。对疾病特定教育内容的期望在很大程度上重叠，但并非同义。医护人员和家长在药物知识的重要性方面达成一致。家长对实验室检查值和诊断程序意义的重要性评分（分别为3.50对2.85，P<0.001和3.42对2.80，P<0.001）显著高于医护人员。家长和医护人员都希望有一个配备充足人员资源的结构化框架用于疾病特定咨询。
