Health Outcomes Division and Texas Center for Health Outcomes Research & Education (TxCORE), College of Pharmacy, University of Texas at Austin.
J Manag Care Spec Pharm. 2021 Sep;27(9-a Suppl):S17-S21. doi: 10.18553/jmcp.2021.27.9-a.s17.
"It's Time to Represent" integrates 2 strategies that challenge the status quo to increase the diversity of populations that participate in research and address drivers of health disparities to better inform value assessment. The first, a community-engaged campaign, proposes to develop authentic, long-term partnerships with community members, their health care providers, and researchers to tailor recruitment and retention methods for underrepresented groups and hold researchers accountable for equitable selection of study participants. The second proposes to create an expectation for researchers to routinely collect patient-reported, actionable social determinants of health data to generate enhanced real-world evidence and thereby improve the quality of inputs utilized in value assessment frameworks. No specific funding was received for this manuscript. The authors report no potential conflicts of interest.
“是时候做出改变了”提出了 2 项策略，旨在改变现状，增加参与研究的人群多样性，解决健康差异的驱动因素，从而更好地为价值评估提供信息。第一项策略是社区参与运动，建议与社区成员、他们的医疗保健提供者和研究人员建立真正的、长期的合作伙伴关系，为代表性不足的群体量身定制招募和保留方法，并要求研究人员公平选择研究参与者。第二项策略建议研究人员养成常规收集患者报告的、可操作的健康社会决定因素数据的习惯，从而生成增强的真实世界证据，进而提高价值评估框架中使用的投入质量。本文没有获得特定的资金支持。作者报告没有潜在的利益冲突。
