Thompson Alyssa M, Fernandez Jennifer M, Shih Terri, Hamzavi Iltefat, Hsiao Jennifer L, Shi Vivian Y
College of Medicine, University of Arizona, Tucson, AZ, USA.
David Geffen School of Medicine, University of California, Los Angeles, CA, USA.
J Dermatolog Treat. 2022 Aug;33(5):2677-2679. doi: 10.1080/09546634.2021.1970707. Epub 2021 Sep 27.
The waxing-and-waning nature of hidradenitis suppurativa (HS), complex treatment plans, along with variable responsiveness to therapy, can create management challenges for patients. In this pilot cross-over randomized controlled trial, we aim to evaluate the effectiveness a HS-written action plan (HSWAP) on patient disease understanding and confidence in recognizing flares and adjusting management. Participants were randomized into a pre-crossover control group that received a verbal consultation (VC)-only, and an intervention group which received the VC + HSWAP. The pre-crossover control group then crossed over (post-crossover control) to also receive the VC + HSWAP (ClinicalTrials.gov Identifier: NCT04600375). Patient comprehension of their disease and management steps was high after both a thorough VC and HSWAPs. However, the majority of patients prefer receiving both a VC and a HSWAP. After the addition of the HSWAP, pre-crossover control group patients' understanding and confidence of their disease and management plan increased across all surveyed questions.
化脓性汗腺炎（HS）病情的反复无常、复杂的治疗方案以及对治疗的不同反应，会给患者的管理带来挑战。在这项试点交叉随机对照试验中，我们旨在评估一份HS书面行动计划（HSWAP）对患者疾病理解以及识别病情发作和调整管理的信心的有效性。参与者被随机分为交叉前仅接受口头咨询（VC）的对照组和接受VC + HSWAP的干预组。交叉前对照组随后交叉（交叉后对照组）也接受VC + HSWAP（ClinicalTrials.gov标识符：NCT04600375）。经过全面的VC和HSWAP后，患者对其疾病和管理步骤的理解程度很高。然而，大多数患者更喜欢同时接受VC和HSWAP。在添加HSWAP后，交叉前对照组患者在所有调查问题上对其疾病和管理计划的理解和信心都有所提高。
