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在不断发展的医疗保健世界中进行成像数据共享:ACR 数据共享工作组的报告,第 1 部分:数据隐私、同意和匿名化的道德问题。

Data Sharing of Imaging in an Evolving Health Care World: Report of the ACR Data Sharing Workgroup, Part 1: Data Ethics of Privacy, Consent, and Anonymization.

机构信息

Chief of Radiology, Doctors Hospital, Coral Gables, Florida; and Associate Professor, Chief of Thoracic Imaging, Baptist Health South Florida, Coral Gables Florida.

Chief Data Science Officer, Massachusetts General Hospital, Boston, Massachusetts; Chief Imaging Information Officer, Massachusetts General Brigham, Boston, Massachusetts; Associate Professor, Department of Radiology and Chief Science Officer, Harvard Medical School, Boston, Massachusetts; and ACR Data Science Institute.

出版信息

J Am Coll Radiol. 2021 Dec;18(12):1646-1654. doi: 10.1016/j.jacr.2021.07.014. Epub 2021 Oct 2.

DOI:10.1016/j.jacr.2021.07.014
PMID:34607754
Abstract

Radiology is at the forefront of the artificial intelligence transformation of health care across multiple areas, from patient selection to study acquisition to image interpretation. Needing large data sets to develop and train these algorithms, developers enter contractual data sharing agreements involving data derived from health records, usually with postacquisition curation and annotation. In 2019 the ACR convened a Data Sharing Workgroup to develop philosophies around best practices in the sharing of health information. The workgroup identified five broad domains of activity important to collaboration using patient data: privacy, informed consent, standardization of data elements, vendor contracts, and data valuation. This is Part 1 of a Report on the workgroup's efforts in exploring these issues.

摘要

放射学处于人工智能在医疗保健多个领域转型的前沿,从患者选择到研究采集到图像解释。开发人员需要大型数据集来开发和训练这些算法,因此会签订涉及从健康记录中获取数据的合同数据共享协议,通常还包括采集后管理和注释。2019 年,ACR 召集了一个数据共享工作组,制定了在共享健康信息方面的最佳实践原则。工作组确定了使用患者数据进行合作的五个重要活动领域:隐私、知情同意、数据元素标准化、供应商合同和数据估值。这是该工作组在探索这些问题的努力的报告第一部分。

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