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因为这是新的:在加拿大合法的医疗协助死亡的早期,医生提供方所经历的意想不到的体验。

Because it was new: Unexpected experiences of physician providers during Canada's early years of legal medical assistance in dying.

机构信息

Bioethics Centre, University of Otago, 71 Fredrick Street, North Dunedin, Dunedin 9010, New Zealand.

Department of General Practice and Rural Medicine, University of Otago, 55 Hanover Street, Dunedin Central, Dunedin 9016, New Zealand.

出版信息

Health Policy. 2021 Nov;125(11):1489-1497. doi: 10.1016/j.healthpol.2021.09.012. Epub 2021 Oct 1.

Abstract

Implementing newly legalized euthanasia or assisted dying presents challenges. The procedure is high-stakes and irreversible and the context is controversial and associated with high emotions and strong opinions. This qualitative study reports unexpected experiences of twenty-one medical doctors who provided Medical Assistance in Dying (MAID) in the first years after legalization in Canada. The phrase 'because it was new' occurred multiple times as doctors attributed unanticipated experiences to the lack of individual and collective experience or knowledge. Positively viewed surprises included increased awareness of palliative care and an unexpected personal sense of fulfillment from helping others. Negative surprises were attributed multiple factors including ambiguously phrased legislation, systems issues and individual inexperience. Participants described issues such as technical difficulties around provision, provider anxiety, logistical snags and inability to adequately counsel and guide families. Participants expressed desire for more guidance, mentoring, training, and team communication. This article draws on phenomenological analysis of data to present providers' accounts of their experiences in the Canadian context. This will assist new providers and jurisdictions in anticipating and preparing for circumstances that were unexpected for the first cohort.

摘要

实施新合法化的安乐死或协助自杀带来了挑战。该程序风险高且不可逆转,而且背景颇具争议,与强烈的情绪和意见相关。本定性研究报告了加拿大合法化后最初几年内提供医疗协助自杀(MAID)的 21 名医生的意外经历。医生们将意外经历归因于缺乏个人和集体经验或知识,多次提到“因为这是新的”这一短语。积极的意外包括对姑息治疗的认识提高,以及帮助他人带来的意外个人满足感。负面的意外则归因于多种因素,包括立法措辞模糊、系统问题和个人缺乏经验。参与者描述了提供服务方面的技术困难、提供者的焦虑、后勤障碍以及无法充分咨询和指导家庭等问题。参与者表示希望获得更多的指导、辅导、培训和团队沟通。本文通过对数据的现象学分析,呈现了提供者在加拿大背景下的经历。这将有助于新的提供者和司法管辖区预测并为第一批人所未曾预料到的情况做好准备。

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