Stacy Kelly E, Perazzo Joseph, Shatz Rhonna, Bakas Tamilyn
College of Nursing, University of Cincinnati, Cincinnati, OH, USA.
Department of Neurology and Rehabilitation, University of Cincinnati, Cincinnati, OH, USA.
West J Nurs Res. 2022 Mar;44(3):227-238. doi: 10.1177/01939459211050957. Epub 2021 Oct 12.
Lewy body disease (LBD) is a devastating condition with cognitive and physical deficits that pose a challenge to family caregivers. The purpose of this study was to identify the needs and concerns of family caregivers of persons with LBD. A convenience sample of LBD caregivers were interviewed regarding their caregiving needs, concerns, strategies, and advice. A content analysis approach was used to organize data into themes from an existing needs and concerns framework. Findings included the need for more information about the disease, strategies for managing LBD-related emotions and behaviors, support and assistance with physical and instrumental care, and strategies for managing one's own personal responses to caregiving. Findings highlight the need for a Lewy body specific caregiver assessment tool and future caregiver interventions.
路易体痴呆症（LBD）是一种具有认知和身体缺陷的毁灭性疾病，给家庭照顾者带来了挑战。本研究的目的是确定LBD患者家庭照顾者的需求和担忧。对LBD照顾者的便利样本进行了访谈，询问他们的照顾需求、担忧、策略和建议。采用内容分析方法，根据现有的需求和担忧框架将数据组织成主题。研究结果包括需要更多关于该疾病的信息、管理与LBD相关的情绪和行为的策略、身体和工具性护理方面的支持与协助，以及管理个人对照顾的反应的策略。研究结果强调了需要一种针对路易体痴呆症的照顾者评估工具以及未来的照顾者干预措施。
