Davison Sara N, Klarenbach Scott, Manns Braden, Schnick-Makaroff Kara, Buzinski Robert, Corradetti Bonnie, Short Hilary, Johnson Jeffrey A
Division of Nephrology and Immunology, Department of Medicine, University of Alberta, 11-113L Clinical Sciences Building, Edmonton, AB, T6G 2G3, Canada.
Department of Medicine and Department of Community Health Sciences, University of Calgary, O'Brien Institute of Public Health, 3280 Hospital Drive NW, Calgary, AB, T2N 4Z6, Canada.
J Patient Rep Outcomes. 2021 Oct 12;5(Suppl 2):93. doi: 10.1186/s41687-021-00365-3.
Kidney failure requiring dialysis is associated with high symptom burden and low health-related quality of life (HRQL). Patient-reported outcome measures (PROMs) are standardized instruments that capture patients' symptom burden, level of functioning, and HRQL. The routine use of PROMs can be used to monitor aspects of patients' health that may otherwise be overlooked, inform care planning, and facilitate the introduction of treatments. Incorporating PROMs into clinical practice is an appropriate strategy to engage patients and enhance their role in decisions regarding their care and outcomes. However, the implementation of PROMs measurement and associated interventions can be challenging given the nature of clinical practice in busy hemodialysis units, the variations in organization and clinical workflow across units, as well as regional programs. Implementing PROMs and linking these with actionable treatment aids to alleviate bothersome symptoms and improve patients' wellbeing is key to improving patients' health. Other considerations in implementing PROMs within a hemodialysis setting include integration into electronic medical records, purchase and configuration of electronic tools (i.e., tablets), storage and disinfection of such tools, and ongoing IT resources. It is important to train clinicians on the practical elements of using PROMs, however there is also a need to engage clinicians to use PROMs on an ongoing basis. This article describes how PROMs have been implemented at in-centre hemodialysis units in Alberta, Canada, addressing each of these elements.
需要透析的肾衰竭与高症状负担和低健康相关生活质量(HRQL)相关。患者报告结局测量(PROMs)是用于获取患者症状负担、功能水平和HRQL的标准化工具。PROMs的常规使用可用于监测患者健康中可能被忽视的方面,为护理计划提供信息,并促进治疗的引入。将PROMs纳入临床实践是让患者参与并增强他们在护理和结局决策中作用的合适策略。然而,鉴于繁忙血液透析单位的临床实践性质、各单位组织和临床工作流程的差异以及区域项目,PROMs测量及相关干预措施的实施可能具有挑战性。实施PROMs并将其与可采取行动的治疗辅助手段相联系以减轻令人烦恼的症状并改善患者健康状况是改善患者健康的关键。在血液透析环境中实施PROMs的其他考虑因素包括整合到电子病历中、电子工具(如平板电脑)的购买和配置、此类工具的存储和消毒以及持续的信息技术资源。培训临床医生使用PROMs的实际操作内容很重要,然而也需要让临床医生持续使用PROMs。本文描述了加拿大艾伯塔省中心血液透析单位如何实施PROMs,涉及上述每个要素。