Gise Jensi, Cohen Lindsey L
Department of Psychology, Georgia State University, USA.
J Pediatr Psychol. 2022 Mar 5;47(3):292-305. doi: 10.1093/jpepsy/jsab100.
Parents of children with cancer (PCCs) experience stress as they navigate managing their child's illness. Arguably, social support is critical to PCCs' well-being. This review examines the literature on social support in PCCs.
Studies of social support in PCCs were collected from PsycINFO, CINHAL, and MEDLINE. Data were extracted from 37 studies published between January 2010 and May 2021 related to the conceptualization, measurement, and availability of social support in PCCs. Relationships between PCCs' social support, well-being, and unique parent and child factors were also synthesized. Risks of biases were assessed using domains of the Effective Public Health Practice Project.
Social support in PCCs is conceptualized as (a) perceived availability and satisfaction with social support and (b) social support seeking as a coping strategy. Parents of children with cancer report receiving as much or more support than typical adults, but PCCs engage in less social support seeking. Family and significant others are the most prevalent sources of support, and emotional support is the most received type of social support. Social support is positively related to well-being and negatively related to distress, anxiety, and posttraumatic stress. Findings related to social support differences based on parent and child unique factors were minimal and present opportunities for future research. The risk of bias was generally low, with caution that most studies cannot demonstrate directionality of findings due to cross-sectional study designs.
Given the consistent positive association between social support and well-being in PCCs, clinicians should assess and encourage social support for this vulnerable population.
癌症患儿的父母(PCCs)在应对孩子的疾病时会经历压力。可以说,社会支持对PCCs的幸福感至关重要。本综述考察了关于PCCs社会支持的文献。
从心理学文摘数据库(PsycINFO)、护理学与健康领域数据库(CINHAL)和医学期刊数据库(MEDLINE)收集有关PCCs社会支持的研究。从2010年1月至2021年5月发表的37项研究中提取数据,这些研究涉及PCCs社会支持的概念化、测量及可得性。还综合分析了PCCs的社会支持、幸福感与独特的父母和孩子因素之间的关系。使用有效公共卫生实践项目的领域评估偏倚风险。
PCCs的社会支持被概念化为:(a)对社会支持的感知可得性和满意度;(b)将寻求社会支持作为一种应对策略。癌症患儿的父母报告称获得的支持与普通成年人一样多或更多,但PCCs寻求社会支持的行为较少。家庭和重要他人是最主要的支持来源,情感支持是最常获得的社会支持类型。社会支持与幸福感呈正相关,与痛苦、焦虑和创伤后应激呈负相关。基于父母和孩子独特因素的社会支持差异的研究结果很少,为未来研究提供了机会。偏倚风险总体较低,但需注意,由于横断面研究设计,大多数研究无法证明研究结果的方向性。
鉴于PCCs的社会支持与幸福感之间始终存在正相关,临床医生应评估并鼓励为这一弱势群体提供社会支持。