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癌症患儿父母的幸福感:疾病认知对希望和社会支持的中介作用。

Well-being in parents of children with cancer: illness perceptions' mediating role for hope and social support.

作者信息

Schwartz-Attias Irit, Krulik Tamar, Ronen Tammie

机构信息

Meir Academic Nursing School, Meir Medical Center, Clalit Health Services, Kfar Saba, Israel.

Department of Nursing, Faculty of Medical & Health Sciences, Steyer School of Health Professions, Tel Aviv University, Tel Aviv, Israel.

出版信息

Front Psychol. 2024 Jul 3;15:1206520. doi: 10.3389/fpsyg.2024.1206520. eCollection 2024.

Abstract

INTRODUCTION

Parents of children with cancer may experience enormous physical and emotional pressures. During such times, perception of the situation can be important in mediating the link between one's basic resources (mainly cognitive and social) and the well-being one attains as an emotional and cognitive response. This study aimed to explore the role of illness impact perceptions in mediating the link between hope, social support and subjective well-being in parents of children with cancer.

METHODS

The cross-sectional study included 108 parents of children aged 7-18 diagnosed with cancer at least 6 months prior to the study. The parents completed one questionnaire comprising five instruments: perceived impact of illness, hope, social support, positive and negative affect (the emotional component of well-being) and life satisfaction (the cognitive component of well-being). Descriptive statistics and Pearson correlations were conducted for all study variables. SEM analysis was performed to examine the study's theoretical model.

RESULTS

The current sample included 108 parents of children with cancer recruited from two pediatric hematology-oncology wards in two different hospitals in central Israel. Most participants were mothers (70.4%), and the mean age was 44.46. The main results indicated that hope and social support correlated negatively with perceptions of the illness' impact. Illness impact perceptions mediated the relations between hope, social support and positive emotions, which means that when the parents perceived their child's illness as less impactful on the family, they experienced higher levels of emotional well-being.

CONCLUSION

A parent with social support resources and higher levels of hope experiences higher levels of positive perceptions regarding their child's illness. Higher levels of positive perceptions allow the parent to express more positive than negative emotions, thus maintaining a more optimal level of subjective emotional well-being. The findings offer implications for healthcare teams to enhance sensitivity to parents' needs and to help parents attain more resources, positive perceptions, and well-being.

摘要

引言

癌症患儿的父母可能会经历巨大的身体和情感压力。在此期间,对情况的认知在调节一个人的基本资源(主要是认知和社会资源)与作为情感和认知反应所获得的幸福感之间的联系方面可能很重要。本研究旨在探讨疾病影响认知在调节癌症患儿父母的希望、社会支持与主观幸福感之间联系中的作用。

方法

这项横断面研究纳入了108名子女年龄在7至18岁之间、在研究前至少6个月被诊断患有癌症的患儿的父母。父母们完成了一份包含五种工具的问卷:疾病感知影响、希望、社会支持、积极和消极情绪(幸福感的情感成分)以及生活满意度(幸福感的认知成分)。对所有研究变量进行了描述性统计和皮尔逊相关性分析。进行了结构方程模型分析以检验该研究的理论模型。

结果

当前样本包括从以色列中部两家不同医院的两个儿科血液肿瘤病房招募的108名癌症患儿的父母。大多数参与者是母亲(70.4%),平均年龄为44.46岁。主要结果表明,希望和社会支持与疾病影响认知呈负相关。疾病影响认知介导了希望、社会支持与积极情绪之间的关系,这意味着当父母认为孩子的疾病对家庭影响较小时,他们会体验到更高水平的情感幸福感。

结论

拥有社会支持资源且希望水平较高的父母对孩子的疾病有更积极的认知。更高水平的积极认知使父母能够表达更多积极而非消极的情绪,从而维持更优化的主观情感幸福感水平。这些发现为医疗团队提高对父母需求的敏感度以及帮助父母获得更多资源、积极认知和幸福感提供了启示。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8851/11252627/f561fa2735b8/fpsyg-15-1206520-g001.jpg

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