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2019冠状病毒病大流行对囊性纤维化中心及医疗的影响：美国各中心的调查结果

Impact of the SARS-CoV-2 pandemic on cystic fibrosis centres and care: survey results from US centres.

作者信息

Muhlebach Marianne S, Cunningham Fiona, LiPuma John J, Zhou Juyan J, Saiman Lisa

机构信息

Dept of Pediatrics, Division Pulmonology CB#7217, University of North Carolina, Chapel Hill, NC, USA.

Marsico Lung Institute, Chapel Hill, NC, USA.

出版信息

ERJ Open Res. 2021 Oct 11;7(4). doi: 10.1183/23120541.00249-2021. eCollection 2021 Oct.

DOI:10.1183/23120541.00249-2021
PMID:34646879
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8364745/
Abstract

https://bit.ly/2V7g09x.

摘要

https://bit.ly/2V7g09x. （此为网址，无法准确翻译为中文，保留原文即可）

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a489/8502937/8f78e990b8ab/00249-2021.01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a489/8502937/8f78e990b8ab/00249-2021.01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a489/8502937/8f78e990b8ab/00249-2021.01.jpg

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本文引用的文献

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Telehealth spirometry for children with cystic fibrosis.远程医疗肺量测定术在囊性纤维化患儿中的应用。
Arch Dis Child. 2020 Dec;105(12):1203-1205. doi: 10.1136/archdischild-2019-317147. Epub 2019 Nov 6.
2
Impact of home spirometry on medication adherence among adolescents with cystic fibrosis.家庭肺功能测定对青少年囊性纤维化患者药物依从性的影响。
Pediatr Pulmonol. 2018 Apr;53(4):431-436. doi: 10.1002/ppul.23950. Epub 2018 Feb 19.
3
Home Monitoring of Patients with Cystic Fibrosis to Identify and Treat Acute Pulmonary Exacerbations. eICE Study Results.
年度回顾：2021年的真实世界证据、功能监测与新兴疗法
J Cyst Fibros. 2022 Mar;21(2):191-196. doi: 10.1016/j.jcf.2022.02.014. Epub 2022 Mar 7.
囊性纤维化患者的家庭监测以识别和治疗急性肺部加重。eICE研究结果。
Am J Respir Crit Care Med. 2017 Nov 1;196(9):1144-1151. doi: 10.1164/rccm.201610-2172OC.
4
Cystic Fibrosis Foundation pulmonary guideline. pharmacologic approaches to prevention and eradication of initial Pseudomonas aeruginosa infection.囊性纤维化基金会肺部指南：预防和清除初始绿脓假单胞菌感染的药物治疗方法。
Ann Am Thorac Soc. 2014 Dec;11(10):1640-50. doi: 10.1513/AnnalsATS.201404-166OC.