Tadas Shreya, Pretorius Claudette, Foster Emma J, Gorely Trish, Leslie Stephen J, Coyle David
School of Computer Science, University College Dublin, Dublin, Ireland.
Cardiac Unit, NHS Highland, Inverness, United Kingdom.
JMIR Cardio. 2021 Oct 14;5(2):e30428. doi: 10.2196/30428.
An acute cardiac incident is a life-changing event that often necessitates surgery. Although surgery has high success rates, rehabilitation, behavioral changes, and self-care are critical to long-term health. Recent systematic reviews have highlighted the potential of technology in this area; however, significant shortcomings have also been identified, particularly with regard to patient experience.
This study aims to improve future systems and to explore the experiences of cardiac patients during key phases after hospitalization: recuperation, initial rehabilitation, and long-term self-management. The key objective is to provide a holistic understanding of behavioral factors that impact people across these phases, understand how experiences evolve over time, and provide user-centered recommendations to improve the design of cardiac rehabilitation and self-management technologies.
Semistructured interviews were conducted with people who attended rehabilitation programs following hospitalization for acute cardiac events. Interviews were developed and data were analyzed via the Theoretical Domains Framework, a pragmatic framework that synthesizes prior theories of behavioral change.
Three phases that arise posthospitalization were examined, namely, recuperation, rehabilitation, and long-term self-management. Through these phases, we describe the impact of key factors and important changes that occur in patients' experiences over time, including the desire for and redefinition of normal life, the need for different types of formal and informal knowledge, the benefits of safe zoning and connectedness, and the need to recognize capability. The use of the Theoretical Domains Framework allows us to show how factors that influence behavior evolve over time and to identify potential sources of tension.
This study provides empirically grounded recommendations for the design of technology-mediated cardiac rehabilitation and self-management systems. Key recommendations include the use of technology to support a normal life, leveraging social influences to extend participants' sense of normality, the use of technology to provide a safe zone, the need to support both emotional and physical well-being, and a focus on recognizing capability and providing recommendations that are positive and reinforce this capability.
急性心脏事件是改变人生的事件,通常需要进行手术。尽管手术成功率很高,但康复、行为改变和自我护理对长期健康至关重要。最近的系统评价突出了技术在这一领域的潜力;然而,也发现了重大缺陷,特别是在患者体验方面。
本研究旨在改进未来的系统,并探索心脏病患者在住院后的关键阶段(康复、初始康复和长期自我管理)的经历。关键目标是全面了解影响这些阶段人群的行为因素,了解经历如何随时间演变,并提供以用户为中心的建议,以改进心脏康复和自我管理技术的设计。
对因急性心脏事件住院后参加康复项目的人员进行了半结构化访谈。访谈内容依据理论领域框架制定,并通过该框架对数据进行分析,理论领域框架是一个综合先前行为改变理论的实用框架。
研究了住院后的三个阶段,即康复、康复期和长期自我管理。通过这些阶段,我们描述了关键因素的影响以及患者经历随时间发生的重要变化,包括对正常生活的渴望和重新定义、对不同类型正式和非正式知识的需求、安全区域和联系的益处以及认识能力的必要性。使用理论领域框架使我们能够展示影响行为的因素如何随时间演变,并识别潜在的紧张源。
本研究为技术介导的心脏康复和自我管理系统的设计提供了基于实证的建议。关键建议包括利用技术支持正常生活、利用社会影响扩展参与者的正常感、利用技术提供安全区域、需要同时支持情感和身体健康,以及关注认识能力并提供积极且强化这种能力的建议。