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心脏康复和自我管理中技术应用的障碍和促进因素:系统定性扎根理论综述。

Barriers to and Facilitators of Technology in Cardiac Rehabilitation and Self-Management: Systematic Qualitative Grounded Theory Review.

机构信息

University College Dublin, Dublin, Ireland.

出版信息

J Med Internet Res. 2020 Nov 11;22(11):e18025. doi: 10.2196/18025.

Abstract

BACKGROUND

Dealing with cardiovascular disease is challenging, and people often struggle to follow rehabilitation and self-management programs. Several systematic reviews have explored quantitative evidence on the potential of digital interventions to support cardiac rehabilitation (CR) and self-management. However, although promising, evidence regarding the effectiveness and uptake of existing interventions is mixed. This paper takes a different but complementary approach, focusing on qualitative data related to people's experiences of technology in this space.

OBJECTIVE

Through a qualitative approach, this review aims to engage more directly with people's experiences of technology that supports CR and self-management. The primary objective of this paper is to provide answers to the following research question: What are the primary barriers to and facilitators and trends of digital interventions to support CR and self-management? This question is addressed by synthesizing evidence from both medical and computer science literature. Given the strong evidence from the field of human-computer interaction that user-centered and iterative design methods increase the success of digital health interventions, we also assess the degree to which user-centered and iterative methods have been applied in previous work.

METHODS

A grounded theory literature review of articles from the following major electronic databases was conducted: ACM Digital Library, PsycINFO, Scopus, and PubMed. Papers published in the last 10 years, 2009 to 2019, were considered, and a systematic search with predefined keywords was conducted. Papers were screened against predefined inclusion and exclusion criteria. Comparative and in-depth analysis of the extracted qualitative data was carried out through 3 levels of iterative coding and concept development.

RESULTS

A total of 4282 articles were identified in the initial search. After screening, 61 articles remained, which were both qualitative and quantitative studies and met our inclusion criteria for technology use and health condition. Of the 61 articles, 16 qualitative articles were included in the final analysis. Key factors that acted as barriers and facilitators were background knowledge and in-the-moment understanding, personal responsibility and social connectedness, and the need to support engagement while avoiding overburdening people. Although some studies applied user-centered methods, only 6 involved users throughout the design process. There was limited evidence of studies applying iterative approaches.

CONCLUSIONS

The use of technology is acceptable to many people undergoing CR and self-management. Although background knowledge is an important facilitator, technology should also support greater ongoing and in-the-moment understanding. Connectedness is valuable, but to avoid becoming a barrier, technology must also respect and enable individual responsibility. Personalization and gamification can also act as facilitators of engagement, but care must be taken to avoid overburdening people. Further application of user-centered and iterative methods represents a significant opportunity in this space.

摘要

背景

应对心血管疾病具有挑战性,人们在遵循康复和自我管理计划方面常常感到困难。有几项系统评价已经探索了数字干预措施支持心脏康复(CR)和自我管理的潜力的定量证据。然而,尽管前景广阔,但关于现有干预措施的有效性和采用情况的证据参差不齐。本文采取了不同但互补的方法,重点关注与该领域人们对技术体验相关的定性数据。

目的

通过定性方法,本综述旨在更直接地了解支持 CR 和自我管理的技术的人们的体验。本文的主要目的是回答以下研究问题:支持 CR 和自我管理的数字干预措施的主要障碍、促进因素和趋势是什么?通过综合医学和计算机科学文献中的证据来回答这个问题。鉴于人机交互领域有强有力的证据表明以用户为中心和迭代设计方法可提高数字健康干预措施的成功率,我们还评估了以用户为中心和迭代方法在以前工作中的应用程度。

方法

对以下主要电子数据库中的文章进行了扎根理论文献综述:ACM 数字图书馆、PsycINFO、Scopus 和 PubMed。考虑了过去 10 年(2009 年至 2019 年)发表的文章,并进行了预定义关键词的系统搜索。根据预定义的纳入和排除标准对论文进行筛选。通过 3 级迭代编码和概念开发对提取的定性数据进行比较和深入分析。

结果

初步搜索共确定了 4282 篇文章。筛选后,有 61 篇文章符合我们对技术使用和健康状况的纳入标准,这些文章既是定性的又是定量的研究。在这 61 篇文章中,有 16 篇定性文章被纳入最终分析。作为障碍和促进因素的关键因素包括背景知识和即时理解、个人责任和社会联系,以及支持参与的需求,同时避免给人们带来过重负担。虽然有些研究采用了以用户为中心的方法,但只有 6 项研究在整个设计过程中涉及用户。只有有限的证据表明研究应用了迭代方法。

结论

许多接受 CR 和自我管理的人都可以接受技术的使用。尽管背景知识是一个重要的促进因素,但技术还应支持更持续和即时的理解。关联性很有价值,但为了避免成为障碍,技术还必须尊重并使个人负责。个性化和游戏化也可以作为参与的促进因素,但必须注意避免给人们带来过重负担。在这个领域进一步应用以用户为中心和迭代的方法是一个重要的机会。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3345/7688378/8823736a7d0c/jmir_v22i11e18025_fig1.jpg

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