Nabbijohn A Natisha, Tomlinson Rachel M, Lee Soeun, Morrongiello Barbara A, McMurtry C Meghan
Department of Psychology, University of Guelph, Guelph, ON, Canada.
Pediatric Chronic Pain Program, McMaster Children's Hospital, Hamilton, ON, Canada.
Front Psychol. 2021 Oct 1;12:680277. doi: 10.3389/fpsyg.2021.680277. eCollection 2021.
Pediatric chronic pain is a prevalent condition that requires significant coping to encourage optimal functioning; however, relevant research is vast, heterogeneous, and difficult to interpret. To date, no attempt has been made to map and summarize the measurement and conceptualization of coping responses in the context of pediatric chronic pain. A scoping review was conducted to map and summarize the participant characteristics, methodologies, theoretical frameworks, and measures used to assess coping responses in youth with chronic pain. The extent to which authors used definitions and examples of coping responses (conceptual clarity) as well as consistently used measures (measurement consistency) and their corresponding conceptualizations (conceptual consistency) relative to how they were intended to be used were assessed. Searches were conducted through MEDLINE (PubMed) and PsycINFO. Following title/abstract screening, full-text extractions were performed on 125 English-language publications on coping in youth with chronic pain. Of the 125 studies, only 12.8% used a theoretical framework to explain the coping responses assessed, and even fewer (7.2%) used theory to guide measure selection. Conceptual clarity was rated "low/very low" (i.e., no definitions and/or examples) for 47.2% of studies. The majority of studies were conducted in the United States (67%) and a preponderance of White and female participants was sampled. The research primarily used quantitative methods (85%) and cross-sectional designs (67%). Parent- or self-report questionnaires were the most common methods for assessing coping (86%). Of the 95 studies that utilized one of the 14 questionnaires with known psychometric properties, 33.7 and 55.8% had one or more discrepancies for conceptual and measurement consistency, respectively. This review highlights the lack of clear descriptions and theoretical frameworks of coping responses for pediatric chronic pain. Inconsistencies in the measurement and conceptualization of coping responses limit research and clinical advancements. As a field, we need to strive toward using well-developed theory to create fewer, more well-established standardized measures with clearly defined coping responses. Opportunities for qualitative and observational research in more diverse patient populations should be considered for theory construction and measure validation. https://osf.io/xvn2a/?view_only=eff04e0c0b9649be89d403b10e9ff082.
小儿慢性疼痛是一种普遍存在的病症，需要大量应对措施以促进最佳功能；然而，相关研究数量众多、内容繁杂且难以解读。迄今为止，尚未有人尝试梳理和总结小儿慢性疼痛背景下应对反应的测量与概念化。开展了一项范围综述，以梳理和总结用于评估慢性疼痛青少年应对反应的参与者特征、方法、理论框架及测量手段。评估了作者在使用应对反应的定义和示例（概念清晰度）以及在测量一致性和相应概念化（概念一致性）方面与预期使用方式的相符程度。通过MEDLINE（PubMed）和PsycINFO进行检索。在标题/摘要筛选之后，对125篇关于慢性疼痛青少年应对的英文出版物进行了全文提取。在这125项研究中，仅有12.8%使用理论框架来解释所评估的应对反应，甚至更少（7.2%）使用理论来指导测量手段的选择。47.2%的研究中概念清晰度被评为“低/非常低”（即没有定义和/或示例）。大多数研究在美国开展（67%），抽样的参与者以白人和女性为主。该研究主要采用定量方法（85%）和横断面设计（67%）。家长报告或自我报告问卷是评估应对的最常用方法（86%）。在利用14份具有已知心理测量特性问卷之一的95项研究中，分别有33.7%和55.8%在概念一致性及测量一致性方面存在一个或多个差异。本综述凸显了小儿慢性疼痛应对反应缺乏清晰描述和理论框架的问题。应对反应在测量和概念化方面的不一致限制了研究和临床进展。作为一个领域而言，我们需要努力运用完善的理论来创建更少、更完善且应对反应定义明确的标准化测量手段。应考虑在更多样化的患者群体中开展定性和观察性研究，以进行理论构建和测量手段验证。https://osf.io/xvn2a/?view_only=eff04e0c0b9649be89d403b10e9ff082
