Institute of Allied Health Sciences Research, De Montfort University, Leicester, UK.
Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, London, UK.
Disabil Rehabil. 2022 Nov;44(23):7217-7225. doi: 10.1080/09638288.2021.1988154. Epub 2021 Oct 18.
Undergoing an amputation is a life-altering experience that can involve a protracted and intensive period of care from a range of healthcare professionals. Amputation care within the NHS has historically been criticised. Here we seek to understand how patients are experiencing care by exploring their stories and identifying features of both high- and low-quality care.
We analysed patient stories posted on the patient feedback site Care Opinion during the period 2018-2020 to examine how amputee patients (and their families) experience NHS care. Using thematic analysis, we identified four key themes.
We found that patients' stories of undergoing an amputation as posted on Care Opinion give overwhelmingly positive feedback on their experiences. Patients report feeling well-supported by empathetic staff, and that the outcomes, in terms of quality of life and restoration of mobility, are beneficial. Time was a common feature within the posts we examined and negative experiences of care often related to untimeliness in a variety of ways.
Care Opinion provides a useful and accessible resource for understanding how patients experience amputation care; analysis of stories posted there provides preliminary ideas of the features of "good care" from a patient-centred perspective.IMPLICATIONS FOR REHABILITATIONPatients undergoing amputations view professionalism of staff as important for good care.Timeliness is important to patients in seeing care in positive terms, ensuring patients are supported in their care during and after amputation in a timely manner is therefore important for achieving good rehabilitation care.Rehabilitation and related services supporting patients who have undergone amputations could usefully patient feedback sites as a means for further understanding the experiences of their patients and for improving services where necessary.
接受截肢是一种改变生活的经历，可能需要一系列医疗保健专业人员进行长期而密集的护理。英国国家医疗服务体系（NHS）的截肢护理历来受到批评。在这里，我们试图通过探索患者的故事并确定高质量和低质量护理的特征来了解患者的护理体验。
我们分析了 Care Opinion 患者反馈网站在 2018-2020 年期间发布的患者故事，以检查截肢患者（及其家属）如何体验 NHS 护理。我们使用主题分析方法确定了四个关键主题。
我们发现，Care Opinion 上发布的截肢患者的故事对他们的经历给予了压倒性的积极反馈。患者报告说他们得到了富有同情心的工作人员的支持，生活质量和活动能力的恢复结果是有益的。时间是我们研究的帖子中的一个常见特征，负面的护理体验往往与各种方面的不及时有关。
Care Opinion 为了解患者如何体验截肢护理提供了一个有用且易于访问的资源；对那里发布的故事进行分析，从以患者为中心的角度初步了解了“良好护理”的特征。
接受截肢的患者将工作人员的专业精神视为良好护理的重要因素。及时性对患者从积极的角度看待护理很重要，因此，确保患者在截肢期间和之后及时得到支持，对于实现良好的康复护理至关重要。支持接受截肢的患者的康复和相关服务可以将患者反馈网站作为进一步了解患者体验和必要时改进服务的一种手段。
