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Psychooncology. 2020 Nov;29(11):1723-1733. doi: 10.1002/pon.5500. Epub 2020 Aug 23.
2
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J Cancer Surviv. 2020 Dec;14(6):939-958. doi: 10.1007/s11764-020-00905-8. Epub 2020 Jun 30.
3
A structural equation modeling approach to understanding pathways linking survivorship care plans to survivor-level outcomes.采用结构方程建模方法理解生存护理计划与生存者水平结局之间的关联途径。
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Tailoring the amount of treatment information to cancer patients' and survivors' preferences: Effects on patient-reported outcomes.根据癌症患者和幸存者的偏好调整治疗信息的数量:对患者报告结局的影响。
Patient Educ Couns. 2020 Mar;103(3):514-520. doi: 10.1016/j.pec.2019.09.024. Epub 2019 Sep 26.
5
The effect of cancer treatment summaries on patient-centered communication and quality of care for cancer survivors: A pooled cross-sectional HINTS analysis.癌症治疗总结对癌症幸存者以患者为中心的沟通和护理质量的影响:HINTS 分析的 pooled 横断面研究。
Patient Educ Couns. 2020 Feb;103(2):301-308. doi: 10.1016/j.pec.2019.08.036. Epub 2019 Aug 28.
6
Implications for patient-provider communication and health self-efficacy among cancer survivors with multiple chronic conditions: results from the Health Information National Trends Survey.癌症幸存者多重慢性病对医患沟通和健康自我效能的影响:来自健康信息国家趋势调查的结果。
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Implementing personalized pathways for cancer follow-up care in the United States: Proceedings from an American Cancer Society-American Society of Clinical Oncology summit.美国实施癌症随访护理的个性化路径:美国癌症协会-美国临床肿瘤学会峰会会议记录。
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Care coordination for complex cancer survivors in an integrated safety-net system: a study protocol.综合安全网系统中复杂癌症幸存者的护理协调:一项研究方案。
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Long-Term Survivorship Care After Cancer Treatment - Summary of a 2017 National Cancer Policy Forum Workshop.癌症治疗后长期生存者的照护-2017 年国家癌症政策论坛研讨会总结。
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理解以患者为中心的生存关怀计划的实施:一项对复杂癌症生存者的探索性访谈研究。

Understanding the Delivery of Patient-Centered Survivorship Care Planning: An Exploratory Interview Study With Complex Cancer Survivors.

机构信息

Department of Epidemiology, Columbia University Mailman School of Public Health, New York, NY, USA.

Department of Sociomedical Sciences, Columbia University Mailman School of Public Health, New York, NY, USA.

出版信息

Cancer Control. 2021 Jan-Dec;28:10732748211011957. doi: 10.1177/10732748211011957.

DOI:10.1177/10732748211011957
PMID:34689577
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8718161/
Abstract

INTRODUCTION

Understanding key elements of the survivorship care planning process, such as patient-centered communication (PCC) and health self-efficacy, are critical for delivering patient-centered survivorship care to cancer survivors with multiple chronic conditions ("complex cancer survivors"). Building upon our team's recent research efforts to examine the survivorship care planning process from a patient-centered lens, this exploratory study leveraged an ongoing quasi-experimental trial to elucidate the experience of complex cancer survivors with survivorship care planning and post-treatment management.

METHODS

We conducted a hypothesis-generating thematic content analysis on 8 interview transcripts.

RESULTS

Survivors reported positive experiences communicating with their oncology care team but the presence of multiple chronic conditions in addition to cancer creates additional barriers to patient-centered survivorship care.

CONCLUSION

These findings support the need for further in-depth research aimed at improving PCC across all care teams and enabling self-management by delivering more personalized survivorship care planning that aligns with survivor's needs, values, and preferences.

摘要

简介

理解生存护理计划过程中的关键要素,如以患者为中心的沟通(PCC)和健康自我效能,对于为患有多种慢性疾病的癌症幸存者(“复杂癌症幸存者”)提供以患者为中心的生存护理至关重要。基于我们团队最近从以患者为中心的角度研究生存护理计划过程的研究努力,这项探索性研究利用正在进行的准实验性试验来阐明复杂癌症幸存者的生存护理计划和治疗后管理的体验。

方法

我们对 8 份访谈记录进行了假设生成的主题内容分析。

结果

幸存者报告说与肿瘤学护理团队进行沟通的体验是积极的,但除癌症以外的多种慢性疾病的存在给以患者为中心的生存护理带来了额外的障碍。

结论

这些发现支持需要进一步深入研究,旨在通过提供更符合幸存者需求、价值观和偏好的个性化生存护理计划,提高所有护理团队的 PCC 并使自我管理能力,从而改善生存护理计划。