Busquet-Duran Xavier, Jiménez-Zafra Eva María, Martínez-Losada Emilio José, Tura-Poma Magda, Llobera-Estrany Joana, Bosch-de la Rosa Olga, Leston-Lado Maria Dolores, Moragas-Roca Anna, Martin Moreno Susana, López-Garcia Ana Isabel, Salamero-Tura Núria, Crespo-Ramírez Sílvia, Manresa-Domínguez Josep Maria, Torán-Monserrat Pere
Programa d' Atenció Domiciliària. Equip de Suport (PADES) Granollers. Servei d'Atenció Primària Vallès Oriental. Institut Català de la Salut. Granollers (Barcelona). España.
Grup de Recerca Multidisciplinar en Salut i Societat (GREMSAS), grupo emergente acreditado por AGAUR. IDIAP Jordi Gol, Mataró. Barcelona. España.
Rev Esp Salud Publica. 2021 Oct 22;95:e202110138.
The wish to hasten death has been little researched in the area of Mediterranean countries and we are not aware of specific studies on its particularities in home care in our setting. The aim of this work was to investigate the prevalence and evolution of wish to hasten death in home care, analysing its relationship with physical, emotional, spiritual, ethical and social-family unrest.
Longitudinal observational study in palliative home care in Catalonia. 43 teams agreed on the level of complexity after the first visit and after the discharge of the patient with the HexCom model, which classifies the desire to anticipate death into Low complexity (no or sporadic manifestation); Medium (persistent desire that requires specific treatment); or High (persistent desire that is considered potentially refractory). For the comparison of proportions, Pearson's Chi-squared test was used and a multivariate logistic regression analysis was performed, in which the dependent variable corresponded to the desire to hasten initial death. The level of significance was p≤0.05.
The total number of patients included in this study was 1,677, of whom 1,169 (69.7%) were oncologic. The prevalence of desire to hasten death was 6.67%. It was related to spiritual distress, especially lack of meaning (OR 3.25) and lack of connection (OR 3.81), to psychoemotional distress (OR 2.34) and to ethical distress. Protective factors were spiritual distress in relation to transcendence (OR 0.50), the caregiver being a partner (OR 0.50) and being cared for by a team that included psychology and social work (OR 0.34). The desire to anticipate death is stable in 71.6% of patients.
The desire to anticipate death is a changing and complex phenomenon that can emerge at any time. The presence of psycho-emotional, spiritual-existential and ethical discomfort, especially in patients without a partner, should make us take a proactive attitude to identify it early.
在地中海国家地区,对加速死亡意愿的研究较少,且我们不清楚在我们所处环境中关于家庭护理中其特殊性的具体研究。这项工作的目的是调查家庭护理中加速死亡意愿的患病率及演变情况,分析其与身体、情感、精神、伦理和社会家庭不安的关系。
在加泰罗尼亚进行的姑息性家庭护理纵向观察研究。43个团队在首次访视后以及患者出院时,根据HexCom模型确定复杂程度,该模型将预期死亡的愿望分为低复杂性(无或偶发表现);中度(持续愿望,需要特定治疗);或高度(持续愿望,被认为可能难以缓解)。对于比例比较,使用Pearson卡方检验,并进行多因素逻辑回归分析,其中因变量对应加速初始死亡的愿望。显著性水平为p≤0.05。
本研究纳入的患者总数为1677例,其中1169例(69.7%)为肿瘤患者。加速死亡愿望的患病率为6.67%。它与精神痛苦相关,尤其是缺乏意义(比值比3.25)和缺乏联系(比值比3.81)、心理情绪痛苦(比值比2.34)以及伦理痛苦。保护因素包括与超越相关的精神痛苦(比值比0.50)、照顾者为伴侣(比值比0.50)以及由包括心理学和社会工作的团队提供护理(比值比0.34)。71.6%的患者预期死亡的愿望是稳定的。
预期死亡的愿望是一种不断变化且复杂的现象,可能在任何时候出现。心理情绪、精神存在和伦理不适的存在,尤其是在没有伴侣的患者中,应促使我们采取积极态度尽早识别它。