Lincolnshire Community Health Services NHS Trust, Lincoln, LN5 7JH, UK.
Rehabilitation Association for Hematopoietic Cell Transplantation, Gloucester, UK.
J Med Case Rep. 2021 Nov 5;15(1):549. doi: 10.1186/s13256-021-03126-4.
The aim of this study is to highlight the importance of having a central case managing team and to make some strong recommendations that can have a positive impact on the lives of hematopoietic stem cell transplantation survivors.
A 2-year-old white child who was diagnosed with acute myeloid leukemia and underwent hematopoietic stem cell transplantation in May 2014 relapsed in March 2017, and underwent a second hematopoietic stem cell transplantation in July 2017, at which point he suffered from graft-versus-host disease. This case report presents his journey and that of his caregivers, and the challenges they faced as patient and parents in pursuit of optimal quality of life during the survivorship period. The case study emphasizes not only the challenges faced by patients but also identified gaps in post-hematopoietic cell transplantation care service delivery. Furthermore, the case study also highlights the importance of involving caregivers in post-transplant care and having a better communication process and service facilitation process throughout the journey of the patient and their carer.
Transplant centers have a duty of care, and a proactive approach with a well-defined pathway is needed for managing post-transplant complications and reducing stress and anxiety for patients and their caregivers.
本研究旨在强调设立中央病例管理团队的重要性，并提出一些具有积极影响的强烈建议，以改善造血干细胞移植幸存者的生活。
一名 2 岁白人儿童，2014 年 5 月诊断为急性髓细胞白血病，并接受造血干细胞移植，2017 年 3 月复发，2017 年 7 月接受第二次造血干细胞移植，此时他患有移植物抗宿主病。本病例报告介绍了他及其照顾者的经历，以及他们作为患者和父母在追求生存期间最佳生活质量时所面临的挑战。该病例研究不仅强调了患者面临的挑战，还发现了造血细胞移植后护理服务提供方面的差距。此外，该病例研究还强调了让照顾者参与移植后护理以及在患者及其照顾者的整个旅程中建立更好的沟通流程和服务促进流程的重要性。
移植中心有护理责任，需要采取积极主动的方法，制定明确的途径，以管理移植后的并发症，减轻患者及其照顾者的压力和焦虑。
