University of Wisconsin-Milwaukee, USA.
Froedtert & the Medical College of Wisconsin, Milwaukee, USA.
J Fam Nurs. 2023 Aug;29(3):227-247. doi: 10.1177/10748407231166945. Epub 2023 May 16.
The impact of an intensive care unit (ICU) admission on family caregivers of patients who have undergone hematopoietic stem cell transplantation (HSCT) has not been well described. Aims of this study were to determine the feasibility of conducting research with family caregivers of HSCT patients during an ICU admission and generate preliminary data about their experiences and engagement in care. Using a mixed-methods, repeated measures design, we collected data from family caregivers after 48 hr in the ICU (T1) and at 48 hr after transferring out of ICU (T2). Enrolling HSCT caregivers in research while in the ICU was feasible (10/13 consented; 9/10 completed data collection at T1); however, data collection at T2 was not possible for most caregivers. Caregiver distress levels were high, and engagement in care was moderate. The three themes that emerged from interviews ( = 5) highlighted that although HSCT family caregivers faced many challenges and received limited support during their ICU experience, they were able to access their own personal resources and demonstrated resilience.
重症监护病房（ICU）入院对接受造血干细胞移植（HSCT）患者的家庭照顾者的影响尚未得到充分描述。本研究的目的是确定在 ICU 入院期间对 HSCT 患者的家庭照顾者进行研究的可行性，并生成有关他们的经验和参与护理的初步数据。本研究采用混合方法、重复测量设计，在 ICU 入住 48 小时后（T1）和转出 ICU 后 48 小时（T2）收集家庭照顾者的数据。在 ICU 中招募 HSCT 照顾者进行研究是可行的（10/13 人同意；9/10 人在 T1 时完成数据收集）；然而，大多数照顾者在 T2 时无法进行数据收集。照顾者的痛苦程度很高，参与护理的程度中等。对 5 名受访者的访谈中出现了三个主题，强调尽管 HSCT 家庭照顾者在 ICU 期间面临许多挑战且获得的支持有限，但他们能够利用自己的个人资源并表现出韧性。
