Delalibera Daniela, Carvalho Alessandra Cristine Ribeiro, Thesolim Bruna Luiza, Rezende Laura Ferreira de
Centro Universitário das Faculdades Associadas de Ensino (UNIFAE), São João da Boa Vista, SP, Brazil.
Int Arch Otorhinolaryngol. 2021 Mar 29;25(4):e536-e544. doi: 10.1055/s-0040-1718963. eCollection 2021 Oct.
Esthetic and functional changes are frequent in patients with head and neck cancer, and they can be caused by both tumor and treatment. Physical and functional impairment often requires the need of a caregiver, who may feel overwhelmed with the tasks of care. This study aims to evaluate the quality of life of patients with head and neck cancer submitted to radiotherapy and the overload of their caregivers. This is a quantitative cross-sectional study with 42 patients with head and neck cancer and 17 caregivers evaluated during the radiotherapy treatment. Patients responded to the following questionnaires: Functional Assessment of Cancer Therapy for Head and Neck Cancer (FACT-H&N) and Shame and Stigma Scale (SSS), while the caregivers responded to the Zarit Burden Interview Scale (ZBI) and Palliative Performance Scale (PPS). Head and neck cancer patients showed a decline in the quality of life in all FACT-H&N domains, with the domain of additional concerns having the worst outcome. Among the feelings reported by patients, the most important was penitence. Less than half of the patients needed caregivers. It was observed that the greater the degree of commitment of the patient, the greater the degree of overload of the caregiver. Therefore, the quality of life of the patient with head and neck cancer is an important aspect to be considered during the therapeutic choice and in the follow-up of the patient, since it has influenced both the patient and his caregiver.
头颈部癌症患者常出现美学和功能方面的改变,这可能由肿瘤本身及治疗引起。身体和功能障碍往往需要有护理人员,而护理人员可能会对护理任务感到不堪重负。 本研究旨在评估接受放射治疗的头颈部癌症患者的生活质量及其护理人员的负担。 这是一项定量横断面研究,在放射治疗期间对42名头颈部癌症患者和17名护理人员进行了评估。患者回答了以下问卷:头颈部癌症的癌症治疗功能评估(FACT-H&N)和羞耻与污名量表(SSS),而护理人员回答了扎里特负担访谈量表(ZBI)和姑息治疗表现量表(PPS)。 头颈部癌症患者在FACT-H&N的所有领域生活质量均有所下降,其中额外担忧领域的结果最差。在患者报告的感受中,最重要的是悔恨。不到一半的患者需要护理人员。观察到患者的投入程度越高,护理人员的负担程度就越大。 因此,头颈部癌症患者的生活质量是治疗选择和患者随访过程中需要考虑的一个重要方面,因为它对患者及其护理人员都有影响。