COVID-19 期间快速实施数字咨询中患者的观点和体验 - 妇科癌症女性中的定性研究。
Patient perspectives and experiences of the rapid implementation of digital consultations during COVID-19 - a qualitative study among women with gynecological cancer.
机构信息
Department of Oncology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.
Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark.
出版信息
Support Care Cancer. 2022 Mar;30(3):2545-2554. doi: 10.1007/s00520-021-06651-6. Epub 2021 Nov 18.
PURPOSE
Due to the first COVID-19 outbreak and subsequent restrictions, standard practice for gynecological cancer quickly evolved to include additional digital consultations. Women with gynecological cancer have a high need for information and experience a high symptom burden. We aimed to explore the experiences and perspectives of the rapid implementation of digital consultations during COVID-19.
METHODS
We conducted individual telephone interviews with patients with gynecological cancer 1-4 days after a telephone or video consultation during the COVID-19 outbreak in April and May 2020. We applied Braun and Clarke's thematic analysis to analyze the qualitative data.
RESULTS
Thirty-two patients with ovarian (50%), cervical (35%), vulvar (12%), and vaginal cancer (3%) participated in the study. The patients experienced that, combined, cancer and COVID-19 restrictions made their situation twice as challenging. In general, the patients valued face-to-face consultations, recommending that they were ideal for the initial appointment to build trust. Overall, there was a willingness to participate in digital consultations because of the restrictions, but the results also showed varying degrees of openness and that individual solutions were favored.
CONCLUSION
The findings of this study show that digital consultations were an accepted alternative during COVID-19. Even though this temporary solution was deemed to be beneficial for practical reasons, patients also experienced digital consultations to be impersonal. A key message is that face-to-face encounters create the foundation to establish a trusting relationship from where a valuable dialogue arises. Digital consultations should therefore be implemented with caution since no one-size-fits-all model is recommended. Among patients with gynecological cancer, however, digital technologies represent a promising and flexible method depending on the purpose of consultations, patient preferences, and needs.
目的
由于首次 COVID-19 爆发和随后的限制，妇科癌症的标准实践迅速演变为包括额外的数字咨询。妇科癌症患者对信息的需求很高，并且症状负担很重。我们旨在探讨在 COVID-19 期间快速实施数字咨询的经验和观点。
方法
我们在 2020 年 4 月和 5 月 COVID-19 爆发期间，在电话或视频咨询后 1-4 天对妇科癌症患者进行了个别电话访谈。我们应用 Braun 和 Clarke 的主题分析来分析定性数据。
结果
32 名卵巢癌（50%）、宫颈癌（35%）、外阴癌（12%）和阴道癌（3%）患者参与了研究。患者们体验到，癌症和 COVID-19 限制的结合使他们的情况变得更加艰难。总的来说，患者们重视面对面的咨询，建议将其作为初始预约的理想选择，以建立信任。总体而言，由于限制，人们愿意参与数字咨询，但结果也显示出不同程度的开放性，并且倾向于个性化解决方案。
结论
本研究的结果表明，数字咨询在 COVID-19 期间是一种可接受的替代方案。尽管这种临时解决方案由于实际原因被认为是有益的，但患者也认为数字咨询缺乏人情味。一个关键信息是，面对面的交流为建立信任关系奠定了基础，从而产生了有价值的对话。因此，应谨慎实施数字咨询，因为不建议采用一刀切的模式。然而，对于妇科癌症患者来说，数字技术是一种有前途且灵活的方法，具体取决于咨询的目的、患者的偏好和需求。
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