Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, PAHO/WHO Collaborating Centre for Nursing Research Development, Ribeirão Preto, SP, Brazil.
Scholarship holder at the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES), Brazil.
Rev Lat Am Enfermagem. 2021 Nov 19;29:e3504. doi: 10.1590/1518-8345.5515.3504. eCollection 2021.
to analyze narratives about the experience of hope of families in the context of pediatric chronic illness.
a narrative research using Family Systems Nursing as a conceptual framework. Three families of children and adolescents diagnosed with complex chronic illness participated in this study, totaling 10 participants. Data collection was developed using family photo-elicitation interviews. Family narratives were constructed and analyzed according to inductive thematic analysis with theoretical data triangulation.
the analytical theme - Waves of Family Hope in the Context of Pediatric Chronic Illness - is composed of four different types of hope: uncertain hope, caring hope, latent hope, and expectant hope. Movement through these hopes generates a driving energy and depends on a number of factors: support, information, searching for normality, and thoughts and comparisons.
the results highlight the interaction and reciprocities of the members of the family unit, and the dynamics of hope, and illustrate the different types of hope and the factors that influence them. This study highlights the experience of hope as a family resource rather than just an individual resource, and supports health professionals in the planning of family care considering hope as an essential and dynamic family resource.
分析儿科慢性病背景下家庭希望体验的叙述。
使用家庭系统护理作为概念框架的叙事研究。3 个患有复杂慢性疾病的儿童和青少年家庭参与了这项研究，共有 10 名参与者。使用家庭照片诱发访谈进行数据收集。根据理论数据三角剖分的归纳主题分析构建和分析家庭叙述。
分析主题 - 儿科慢性病背景下的家庭希望之波 - 由四种不同类型的希望组成：不确定的希望、关怀的希望、潜在的希望和期待的希望。通过这些希望的转变产生了驱动力，这取决于许多因素：支持、信息、寻求常态、以及思考和比较。
研究结果强调了家庭单位成员之间的相互作用和相互关系，以及希望的动态，说明了不同类型的希望和影响它们的因素。这项研究强调了希望作为家庭资源的体验，而不仅仅是个人资源，并支持卫生专业人员在规划家庭护理时将希望作为一种必不可少的动态家庭资源。
