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在格鲁吉亚共和国儿童中使用连续血糖监测系统的经验——一项与家长开展的描述性研究

Experiences of Using a Continuous Glucose Monitoring System in Children-A Descriptive Study with Parents in the Republic of Georgia.

作者信息

Kheladze Nino, Kristensson Lars, Johansson Anders, Crang-Svalenius Elizabeth, Ivarsson Bodil

机构信息

M.Iashvili Children's Central Hospital, Evex Medical Corporation, Lubliana Street 2/6, Tiblisi 0159, Georgia.

Office of Medical Services, University Trust, Region Skåne, SE-221 85 Lund, Sweden.

出版信息

Healthcare (Basel). 2021 Nov 16;9(11):1556. doi: 10.3390/healthcare9111556.

DOI:10.3390/healthcare9111556
PMID:34828602
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8622911/
Abstract

The benefits of medical devices are often multifaceted and may have an important impact on patients' and relatives' physical, mental and/or social well-being. Diabetes is a metabolic disorder and a continuous subcutaneous glucose monitoring sensor can suggest increasing treatment satisfaction. The purpose of this study was to describe parents' experiences during their daily lives and support needs when a child uses a Flash Glucose Monitoring system (FGM). Twenty parents ( = 3 men vs. = 17 women) to children (age ranged between 22 months and 16 years) with diabetes disease type 1, treated with an FGM unit (used for an average of 7 months (range 1-72)) at home, participated in this study. A qualitative questionnaire survey with open questions including follow-up dialogues was distributed to the parents, and collected data were analysed using qualitative content analysis. with the Libre device was Md 10 (IQR 9.25-10). One main theme "Advances in technology significantly improved everyday life" emerged from 2 categories: Improvements in quality of life and Elements of challenges. In conclusion, this qualitative study determined that parents of children with DMT1 experience a great improvement in daily life when given the opportunity to use the Libre device.

摘要

医疗设备的益处往往是多方面的,可能会对患者及其亲属的身体、心理和/或社会福祉产生重要影响。糖尿病是一种代谢紊乱疾病,连续皮下葡萄糖监测传感器可以提高治疗满意度。本研究的目的是描述儿童使用闪光葡萄糖监测系统(FGM)时家长在日常生活中的经历和支持需求。二十位家长(3名男性,17名女性)参与了本研究,他们的孩子患有1型糖尿病,年龄在22个月至16岁之间,在家中使用FGM设备进行治疗(平均使用7个月(范围为1 - 72个月))。向家长发放了一份包含开放式问题及后续对话的定性问卷调查,并使用定性内容分析法对收集到的数据进行分析。使用Libre设备的中位数为10(四分位间距9.25 - 10)。从“生活质量改善”和“挑战因素”两个类别中出现了一个主要主题“技术进步显著改善了日常生活”。总之,这项定性研究确定,患有1型糖尿病的儿童的家长在有机会使用Libre设备时,日常生活有了很大改善。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a2b7/8622911/6634e6be46b4/healthcare-09-01556-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a2b7/8622911/7acb8eff02e0/healthcare-09-01556-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a2b7/8622911/6634e6be46b4/healthcare-09-01556-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a2b7/8622911/7acb8eff02e0/healthcare-09-01556-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a2b7/8622911/6634e6be46b4/healthcare-09-01556-g002.jpg

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本文引用的文献

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Pediatric diabetes and skin disease (PeDiSkin): A cross-sectional study in 369 children, adolescents and young adults with type 1 diabetes.儿科糖尿病与皮肤病(PeDiSkin):一项横断面研究,共纳入 369 例 1 型糖尿病患儿、青少年和年轻成人。
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Five-Month Follow-up Shows No Improvement in Dermatological Complications in Children With Type 1 Diabetes Using Continuous Glucose Monitoring Systems and Insulin Pumps.五项月随访结果显示,使用连续血糖监测系统和胰岛素泵的 1 型糖尿病患儿的皮肤并发症并无改善。
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ISPAD Clinical Practice Consensus Guidelines 2018: Glycemic control targets and glucose monitoring for children, adolescents, and young adults with diabetes.
国际儿童青少年糖尿病研究学会2018年临床实践共识指南:糖尿病儿童、青少年及青年的血糖控制目标与血糖监测
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Flash forward: a review of flash glucose monitoring.快进:闪光葡萄糖监测回顾。
Diabet Med. 2018 Apr;35(4):472-482. doi: 10.1111/dme.13584. Epub 2018 Feb 27.
7
EXPLORATION AND PREFERENTIAL RANKING OF PATIENT BENEFITS OF MEDICAL DEVICES: A NEW AND GENERIC INSTRUMENT FOR HEALTH ECONOMIC ASSESSMENTS.医疗器械患者获益的探索和优先排序:一种新的通用健康经济评估工具。
Int J Technol Assess Health Care. 2017 Jan;33(4):463-471. doi: 10.1017/S0266462317000848. Epub 2017 Oct 25.
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Social economic costs of type 1 diabetes mellitus in pediatric patients in Spain: CHRYSTAL observational study.西班牙儿科1型糖尿病患者的社会经济成本:CHRYSTAL观察性研究
Diabetes Res Clin Pract. 2017 May;127:59-69. doi: 10.1016/j.diabres.2017.02.033. Epub 2017 Mar 7.
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Chronic comorbidities in children with type 1 diabetes: a population-based cohort study.1型糖尿病患儿的慢性合并症:一项基于人群的队列研究。
Arch Dis Child. 2015 Aug;100(8):763-8. doi: 10.1136/archdischild-2014-307654. Epub 2015 Apr 15.
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