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中美洲的儿科肿瘤姑息治疗项目：通往成功之路

Pediatric Oncology Palliative Care Programs in Central America: Pathways to Success.

作者信息

Gómez García Wendy Cristhyna, Rivas Silvia, Paz Gabriela, Bustamante Marisol, Castro Gerardo, Gutiérrez Hazel, Ah Chu Maria Sabina, Gassant Pascale Yola, Larin Lovo Rolando, Gamboa Yessika, Torres Núñez Marleni, García Quintero Ximena, Okhuysen-Cawley Regina

机构信息

Oncology Unit, Hospital Infantil Dr. Robert Reid Cabral, Santo Domingo 10101, Dominican Republic.

Palliative Care Program, Unidad Nacional de Oncología Pediátrica, Guatemala 01011, Guatemala.

出版信息

Children (Basel). 2021 Nov 10;8(11):1031. doi: 10.3390/children8111031.

DOI:10.3390/children8111031
PMID:34828744
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8624815/
Abstract

Palliative care offers children who have life-limiting and life-threatening oncologic illnesses and their families improved quality of life. In some instances, impeccable symptom control can lead to improved survival. Cultural and financial barriers to palliative care in oncology patients occur in all countries, and those located in Central America are no exception. In this article, we summarize how the programs participating in the Asociación de Hemato-Oncólogos Pediatras de Centro America (AHOPCA) have developed dedicated oncology palliative care programs. The experience in Guatemala, El Salvador, Costa Rica, Panama, Dominican Republic and Haiti is detailed, with a focus on history, the barriers that have impeded progress, and achievements. Future directions, which, of course, may be impacted by the COVID-19 pandemic, are described as well.

摘要

姑息治疗为患有危及生命和有生命危险的肿瘤疾病的儿童及其家庭提高了生活质量。在某些情况下，完美的症状控制可提高生存率。肿瘤患者接受姑息治疗存在文化和经济障碍，这在所有国家都存在，中美洲国家也不例外。在本文中，我们总结了参与中美洲儿科血液肿瘤学家协会（AHOPCA）的项目是如何开展专门的肿瘤姑息治疗项目的。详细介绍了危地马拉、萨尔瓦多、哥斯达黎加、巴拿马、多米尼加共和国和海地的经验，重点是历史、阻碍进展的障碍以及取得的成就。还描述了未来的方向，当然，这些方向可能会受到新冠疫情的影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/033261c2c547/children-08-01031-g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/7146143feaa1/children-08-01031-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/203d29d6ca89/children-08-01031-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/f8f7a8df1fa9/children-08-01031-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/060e04f90a9a/children-08-01031-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/033261c2c547/children-08-01031-g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/7146143feaa1/children-08-01031-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/203d29d6ca89/children-08-01031-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/f8f7a8df1fa9/children-08-01031-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/060e04f90a9a/children-08-01031-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a014/8624815/033261c2c547/children-08-01031-g005.jpg

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Cancer. 2018 Jun 1;124(11):2278-2288. doi: 10.1002/cncr.31265. Epub 2018 Feb 16.
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Alleviating the access abyss in palliative care and pain relief-an imperative of universal health coverage: the Lancet Commission report.
缓解姑息治疗和疼痛缓解方面的获取差距——全民健康覆盖的当务之急：《柳叶刀》委员会报告
Lancet. 2018 Apr 7;391(10128):1391-1454. doi: 10.1016/S0140-6736(17)32513-8. Epub 2017 Oct 12.
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Palliative Care and Human Rights: A Decade of Evolution in Standards.缓和医疗与人权：标准的十年演进。
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Highlights from the 1st Latin American meeting on metronomic chemotherapy and drug repositioning in oncology, 27-28 May, 2016, Rosario, Argentina.2016年5月27日至28日于阿根廷罗萨里奥举行的第一届拉丁美洲肿瘤学节拍化疗与药物重新定位会议亮点。
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