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“这感觉就像把孩子送进狮穴”——对家长对自闭症谱系障碍包容的态度以及主流教育对其孩子的影响的定性研究。

"It feels like sending your children into the lions' den" - A qualitative investigation into parental attitudes towards ASD inclusion, and the impact of mainstream education on their child.

机构信息

The University of the West of Scotland, School of Education and Social Sciences, UWS Paisley Campus, High Street, Paisley, Scotland, PA1 2BE, UK.

University of Strathclyde, School of Education, LordHope Building, 141 St James Road, Glasgow, Scotland, G4 0LT, UK.

出版信息

Res Dev Disabil. 2022 Jan;120:104128. doi: 10.1016/j.ridd.2021.104128. Epub 2021 Nov 24.

DOI:10.1016/j.ridd.2021.104128
PMID:34837755
Abstract

BACKGROUND

Increasing numbers of autistic children are being educated in mainstream schools. The success of inclusive education is dependent upon multiple factors, including key stakeholders (i.e., teachers and parents). Research has tended to focus on teachers' experiences of inclusion with limited focus on parents.

AIMS

The study aimed to qualitatively investigate parental attitudes and experiences of inclusive education. As such, the research question was: What are attitudes towards, and experiences of, inclusive education for parents of autistic children?

METHODS AND PROCEDURE

Semi-structured interviews were conducted with 12 parents of autistic children. Data was analysed using Thematic Analysis (Braun & Clarke, 2006).

OUTCOMES AND RESULTS

four themes were identified; 1) Feeling Unheard; 2) Implementation of Inclusive Strategies; 3) Social Exclusion; 4) Mental Health and Wellbeing Impact. Findings suggested that parents felt their child struggled socially in mainstream school, with such experiences negatively impacting upon their child's wellbeing. The detrimental impacts were a result of parents believing school staff dismissed their concerns and thus appropriate strategies for their child were not always implemented.

CONCLUSIONS AND IMPLICATIONS

This highlights the need for school staff and parents to work together to enhance inclusivity both academically and socially for autistic children.

摘要

背景

越来越多的自闭症儿童在主流学校接受教育。全纳教育的成功取决于多个因素,包括主要利益相关者(即教师和家长)。研究往往侧重于教师的包容体验,而对家长的关注有限。

目的

本研究旨在定性调查自闭症儿童家长对全纳教育的态度和经验。因此,研究问题是:自闭症儿童家长对全纳教育的态度和经验是什么?

方法和程序

对 12 名自闭症儿童的家长进行了半结构化访谈。使用主题分析(Braun & Clarke,2006)对数据进行了分析。

结果和结论

确定了四个主题;1)感觉被忽视;2)实施全纳策略;3)社会排斥;4)心理健康和幸福感的影响。研究结果表明,家长们认为他们的孩子在主流学校的社交方面存在困难,这些经历对孩子的幸福感产生了负面影响。造成这种负面影响的原因是家长们认为学校工作人员忽视了他们的担忧,因此没有始终实施适合孩子的策略。

这凸显了学校工作人员和家长需要共同努力,在学术和社交方面提高自闭症儿童的包容性。

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