Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, UK.
Birmingham Children's Hospital, Birmingham Women's and Children's NHS Foundation Trust, Birmingham, UK.
Burns. 2022 Mar;48(2):355-364. doi: 10.1016/j.burns.2021.06.005. Epub 2021 Jun 26.
Paediatric burn injuries present physical and psychosocial effects for children and their parents, including disruption to family life. Some burns services in the UK enable parents to administer dressing changes at home to reduce the number of hospital visits. To date, there is no research on parents' experiences of administering dressing changes. The aim of this study was to describe parents' experiences of administering dressing changes in paediatric burns aftercare.
Semi-structured research interviews were conducted with a purposive sample of parents recruited from a paediatric burns centre in the UK. The interview addressed the initial offer of at-home dressing changes by clinicians; parental decision-making in relation to dressing changes; training and support received; and the experience of administering dressing changes, including practical and emotional considerations. Thematic analysis of the data was informed by the framework approach, including associative analysis using demographic and clinical characteristics.
Seventeen participants were interviewed. Three themes of parents' experiences of administering dressing changes were identified including (1) Parental Identity concerning the newly undertaken responsibility and the impact on the parental role; (2) Challenges, physical or emotional, confronted or lessened by administering dressing changes; and (3) Reassurance provided by healthcare professionals and others to support parents to adopt and maintain parent-administered dressing changes.
The qualitative data reported here indicates that parents want to be involved in their child's care by administering dressing changes at home, provided they receive sufficient reassurance that they are able to manage the severity of their child's burn. Parents' concerns about the effectiveness of their dressing changes lacks empirical basis, and this study provides preliminary data to support the development and evaluation of best practice guidance for parent-administered dressing changes in paediatric burns aftercare.
儿科烧伤会对儿童及其父母造成身体和心理社会影响,包括家庭生活的中断。英国的一些烧伤服务机构允许父母在家中进行换药,以减少去医院的次数。迄今为止,尚无关于父母进行换药的经验的研究。本研究旨在描述儿科烧伤康复后父母在家中进行换药的经验。
采用目的抽样法,从英国一家儿科烧伤中心招募了有意愿的父母进行半结构式访谈。访谈内容涉及临床医生最初提供家庭换药的建议;与换药相关的父母决策;接受的培训和支持;以及进行换药的经验,包括实际和情感方面的考虑。数据的主题分析受框架方法的指导,包括使用人口统计学和临床特征的关联分析。
共对 17 名参与者进行了访谈。确定了父母在家中进行换药的三个主题:(1)父母对新承担的责任和对父母角色的影响的认同;(2)在进行换药时面临的身体或情感挑战,或因这些挑战而减轻;(3)医疗保健专业人员和其他人提供的支持,以帮助父母接受和维持家长管理的换药。
这里报告的定性数据表明,父母希望通过在家中进行换药来参与孩子的护理,前提是他们得到足够的保证,即他们能够处理孩子烧伤的严重程度。父母对自己换药效果的担忧缺乏实证依据,本研究提供了初步数据,支持制定和评估儿科烧伤康复后家长自行换药的最佳实践指南。