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围产期舒缓治疗的范围综述:让父母能够尽到为人父母的责任。

A Scoping Review of Perinatal Palliative Care: Allowing Parents to Be Parents.

机构信息

Department of Obstetrics, Gynecology, and Reproductive Sciences, The University of Texas Health Science Center at Houston, Houston, Texas.

Perinatal Diagnostic Center, Charleston Area Medical Center, Charleston, West Virginia.

出版信息

Am J Perinatol. 2023 Sep;40(12):1373-1377. doi: 10.1055/s-0041-1740251. Epub 2021 Dec 2.

Abstract

OBJECTIVE

Perinatal palliative care (PPC) is an option for patients who discover that their infant has a life-limiting fetal condition, which decreases the burden of the condition using a multidisciplinary approach.

STUDY DESIGN

This review discusses the landmark literature in the past two decades, which have seen significant growth and development in the concept of PPC.

RESULTS

The literature describes the background, quality, and benefits of offering PPC, as well as the ethical principles that support its being offered in every discussion of fetal life-limiting diagnoses.

CONCLUSION

PPC shares a similar risk profile to other options after life-limiting diagnosis, including satisfaction with choice of continuation of pregnancy. The present clinical opinion closes by noting common barriers to establishing PPC programs and offers a response to overcome each one.

KEY POINTS

· Perinatal palliative care serves patients who continue pregnancies with life-limiting fetal anomaly.. · Perinatal palliative care has a risk profile similar to other options such as termination.. · Health care providers can serve as champions to extend PPC to patients in their region..

摘要

目的

围产期姑息治疗(PPC)是为发现婴儿患有危及生命的胎儿疾病的患者提供的一种选择,通过多学科方法减轻疾病负担。

研究设计

本综述讨论了过去二十年中的重要文献,这些文献见证了 PPC 概念的显著发展和进步。

结果

文献描述了提供 PPC 的背景、质量和益处,以及支持在每一个胎儿生命有限诊断讨论中提供 PPC 的伦理原则。

结论

PPC 与生命有限诊断后的其他选择具有相似的风险特征,包括对继续妊娠选择的满意度。目前的临床观点指出了建立 PPC 计划的常见障碍,并提出了克服每一个障碍的方法。

关键点

  1. 围产期姑息治疗服务于继续妊娠且胎儿有严重畸形的患者。

  2. 围产期姑息治疗与其他选择(如终止妊娠)具有相似的风险特征。

  3. 医疗保健提供者可以作为倡导者,将 PPC 扩展到所在地区的患者。

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