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围产期舒缓治疗的范围综述:让父母能够尽到为人父母的责任。

A Scoping Review of Perinatal Palliative Care: Allowing Parents to Be Parents.

机构信息

Department of Obstetrics, Gynecology, and Reproductive Sciences, The University of Texas Health Science Center at Houston, Houston, Texas.

Perinatal Diagnostic Center, Charleston Area Medical Center, Charleston, West Virginia.

出版信息

Am J Perinatol. 2023 Sep;40(12):1373-1377. doi: 10.1055/s-0041-1740251. Epub 2021 Dec 2.

DOI:10.1055/s-0041-1740251
PMID:34856607
Abstract

OBJECTIVE

Perinatal palliative care (PPC) is an option for patients who discover that their infant has a life-limiting fetal condition, which decreases the burden of the condition using a multidisciplinary approach.

STUDY DESIGN

This review discusses the landmark literature in the past two decades, which have seen significant growth and development in the concept of PPC.

RESULTS

The literature describes the background, quality, and benefits of offering PPC, as well as the ethical principles that support its being offered in every discussion of fetal life-limiting diagnoses.

CONCLUSION

PPC shares a similar risk profile to other options after life-limiting diagnosis, including satisfaction with choice of continuation of pregnancy. The present clinical opinion closes by noting common barriers to establishing PPC programs and offers a response to overcome each one.

KEY POINTS

· Perinatal palliative care serves patients who continue pregnancies with life-limiting fetal anomaly.. · Perinatal palliative care has a risk profile similar to other options such as termination.. · Health care providers can serve as champions to extend PPC to patients in their region..

摘要

目的

围产期姑息治疗(PPC)是为发现婴儿患有危及生命的胎儿疾病的患者提供的一种选择,通过多学科方法减轻疾病负担。

研究设计

本综述讨论了过去二十年中的重要文献,这些文献见证了 PPC 概念的显著发展和进步。

结果

文献描述了提供 PPC 的背景、质量和益处,以及支持在每一个胎儿生命有限诊断讨论中提供 PPC 的伦理原则。

结论

PPC 与生命有限诊断后的其他选择具有相似的风险特征,包括对继续妊娠选择的满意度。目前的临床观点指出了建立 PPC 计划的常见障碍,并提出了克服每一个障碍的方法。

关键点

  1. 围产期姑息治疗服务于继续妊娠且胎儿有严重畸形的患者。

  2. 围产期姑息治疗与其他选择(如终止妊娠)具有相似的风险特征。

  3. 医疗保健提供者可以作为倡导者,将 PPC 扩展到所在地区的患者。

相似文献

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A Scoping Review of Perinatal Palliative Care: Allowing Parents to Be Parents.围产期舒缓治疗的范围综述:让父母能够尽到为人父母的责任。
Am J Perinatol. 2023 Sep;40(12):1373-1377. doi: 10.1055/s-0041-1740251. Epub 2021 Dec 2.
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The Perinatal Palliative Care Perceptions and Barriers Scale Instrument©: development and validation.围产期姑息治疗认知与障碍量表©:编制与验证
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Lethal fetal abnormalities: how to approach perinatal palliative care?致死性胎儿异常:如何提供围产期姑息治疗?
J Matern Fetal Neonatal Med. 2017 Mar;30(6):755-758. doi: 10.1080/14767058.2016.1186633. Epub 2016 May 26.
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Pediatr Res. 2025 Jan;97(1):115-119. doi: 10.1038/s41390-024-03366-2. Epub 2024 Sep 12.
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State of the science on perinatal palliative care.围产期姑息治疗的科学现状
J Obstet Gynecol Neonatal Nurs. 2013 May-Jun;42(3):372-82; quiz E54-5. doi: 10.1111/1552-6909.12034. Epub 2013 Apr 11.
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The Role of Midwives in US Perinatal Palliative Care: A Scoping Review.美国围产期姑息治疗中助产士的作用:一项范围综述
J Midwifery Womens Health. 2024 Nov-Dec;69(6):875-887. doi: 10.1111/jmwh.13664. Epub 2024 Jul 9.
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Outcomes of delivery in patients with diagnosed life-limiting fetal condition and evaluation of perinatal palliative care program: a retrospective review of palliative care service over 7 years.诊断为胎儿生命有限疾病患者的分娩结局及围产期姑息治疗方案评估:对7年姑息治疗服务的回顾性研究
BMC Palliat Care. 2025 Feb 11;24(1):38. doi: 10.1186/s12904-025-01671-z.
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The role of perinatal palliative care following prenatal diagnosis of major, incurable fetal anomalies: a multicentre prospective cohort study.围产期姑息治疗在产前诊断出严重、不可治愈的胎儿畸形后的作用:一项多中心前瞻性队列研究。
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Perinatal Palliative Care: ACOG COMMITTEE OPINION SUMMARY, Number 786.围产期舒缓治疗:ACOG 委员会意见摘要,第 786 号。
Obstet Gynecol. 2019 Sep;134(3):660-661. doi: 10.1097/AOG.0000000000003426.

引用本文的文献

1
Dobbs-driven expansion of perinatal palliative care: a scoping review of the evidence and its limits.多布斯案推动下围产期姑息治疗的扩展:证据及其局限性的范围综述
Health Aff Sch. 2025 Apr 15;3(5):qxaf081. doi: 10.1093/haschl/qxaf081. eCollection 2025 May.
2
The Role of Midwives in US Perinatal Palliative Care: A Scoping Review.美国围产期姑息治疗中助产士的作用:一项范围综述
J Midwifery Womens Health. 2024 Nov-Dec;69(6):875-887. doi: 10.1111/jmwh.13664. Epub 2024 Jul 9.
3
The Path Is Made by Walking-Mapping the Healthcare Pathways of Parents Continuing Pregnancy after a Severe Life-Limiting Fetal Diagnosis: A Qualitative Interview Study.
路在脚下——描绘严重的胎儿预后不良诊断后父母继续妊娠的医疗保健路径:一项定性访谈研究
Children (Basel). 2022 Oct 13;9(10):1555. doi: 10.3390/children9101555.