Catapano Francesca, Ramacieri Giuseppe, Sperti Giacomo, Corvaglia Luigi Tommaso, Locatelli Chiara
Department of Medical and Surgical Sciences (DIMEC), University of Bologna, Via Massarenti 9, 40138, Bologna, Italy.
School of Specialization in Child Neuropsychiatric, University of Bologna, Via Massarenti 9, 40138, Bologna, Italy.
Pediatr Res. 2025 Jan;97(1):115-119. doi: 10.1038/s41390-024-03366-2. Epub 2024 Sep 12.
Perinatal Palliative Care (PPC) is individualized medical-nursing care aimed at improving the quality of life of newborns with life-limiting conditions and to support their families. This study draws on the analysis of the experience gained over ten years by a service of PPC called the "Percorso Giacomo" (PG).
We employed a SWOT analysis to identify the strengths, weaknesses, opportunities, and threats of the PG through a systematic retrospective review of 48 cases followed by the program over the course of 10 years, 21 unsolicited parents' narrative and 27 experts' point of view.
Main strengths of the program were communication and parents' involvement in shared decision-making. Main weaknesses included lack of knowledge of the presence and the role of the PG and lack of resources. For opportunities, the PG proved to be an innovative choice for pregnancies with a fetal life-limiting diagnosis, however threats were identified such as lack of knowledge of PPC and delayed referrals.
The analysis by SWOT method of the 10-year experience of the PG allowed the identification of limitations and areas of improvement, however demonstrated that the PG provided beneficial services to women faced with fetal life-limiting diagnoses.
Perinatal Palliative Care (PPC) practice and literature on this subject is still limited. This study offers features of the 10-year experience of the Percorso Giacomo (PG), a service of PPC, through a SWOT analysis. By identifying strengths, weaknesses, opportunities and threats of the PG, the study shows limitations and areas of improvement but also benefits of a PPC service to women with fetal diagnosis of life-limiting condition and may allow replication in other institutions.
围产期姑息治疗（PPC）是一种个性化的医疗护理，旨在提高患有危及生命疾病的新生儿的生活质量，并为其家庭提供支持。本研究借鉴了一项名为“Percorso Giacomo”（PG）的围产期姑息治疗服务在十年间积累的经验分析。
我们采用SWOT分析法，通过对该项目在10年期间跟踪的48个病例、21份家长主动提供的叙述以及27位专家的观点进行系统的回顾，来确定PG的优势、劣势、机会和威胁。
该项目的主要优势在于沟通以及家长参与共同决策。主要劣势包括对PG的存在及其作用缺乏了解以及资源匮乏。在机会方面，对于被诊断为胎儿患有危及生命疾病的妊娠而言，PG被证明是一种创新选择，然而也发现了一些威胁，比如对围产期姑息治疗缺乏了解以及转诊延迟。
通过SWOT方法对PG的10年经验进行分析，明确了其局限性和改进领域，不过也表明PG为面临胎儿患有危及生命疾病诊断的女性提供了有益的服务。
围产期姑息治疗（PPC）的实践及相关文献仍然有限。本研究通过SWOT分析呈现了围产期姑息治疗服务“Percorso Giacomo”（PG）的10年经验特点。通过确定PG的优势、劣势、机会和威胁，本研究不仅展示了其局限性和改进领域，还表明了围产期姑息治疗服务对于被诊断为胎儿患有危及生命疾病的女性的益处，并可能促使其他机构进行效仿。
