Dementia Singapore Ltd., Singapore, Singapore.
KALL Psychological & Counselling Services Pte Ltd., Singapore.
Aging Ment Health. 2022 Oct;26(10):1942-1948. doi: 10.1080/13607863.2021.2008306. Epub 2021 Dec 3.
Arts-based programmes for persons with dementia have shown promise in alleviating some of the caregiving challenges for family care partners. The present study sought to broaden the sociocultural perspectives of arts-based programmes by investigating the impact of a locally developed Arts & Dementia programme for persons with dementia on their family care partners in Singapore. Thirty-two family care partners of persons with dementia who participated in the Arts & Dementia programme were recruited. A mixed-methodological study was employed utilising quantitative pre- and post-programme data from the Zarit Burden Interview and Gain in Alzheimer care Instrument, and qualitative data from semi-structured group interviews. Although there were no self-reported short-term changes in perceived caregiving difficulties and gains, semi-structured group interviews revealed potential caregiving benefits. Six overarching themes were identified: (1) contentment and social engagement, (2) re-connecting and developing new interests, (3) positive influence on caregiving, (4) enhancements to the programme, (5) more arts programmes, and (6) more support for families living with dementia. The present study highlights potential benefits of community-based arts activities in enabling caregiving to be a more positive experience for care partners.Supplemental data for this article is available online at http://dx.doi.org/10.1080/13607863.2021.2008306'I kept blaming myself for not spending enough time with him. Communication with him is different now. Watching him on the stage, he is happy and with a purpose'. (Gary, male).
基于艺术的痴呆症患者项目在缓解家庭护理伙伴的一些护理挑战方面显示出了希望。本研究旨在通过调查为新加坡痴呆症患者开发的本地艺术与痴呆症项目对其家庭护理伙伴的影响,拓宽基于艺术的项目的社会文化视角。招募了 32 名参与艺术与痴呆症项目的痴呆症患者的家庭护理伙伴。采用混合方法研究,利用 Zarit 负担访谈和阿尔茨海默病护理增益量表的定量项目前后数据,以及半结构化小组访谈的定性数据。虽然在自我报告的照顾困难和增益方面没有短期变化,但半结构化小组访谈揭示了潜在的照顾益处。确定了六个总体主题:(1)满足感和社会参与,(2)重新联系和发展新兴趣,(3)对照顾的积极影响,(4)对项目的增强,(5)更多的艺术项目,以及(6)为与痴呆症一起生活的家庭提供更多支持。本研究强调了社区艺术活动在使护理成为护理伙伴更积极的体验方面的潜在益处。本文的补充数据可在 http://dx.doi.org/10.1080/13607863.2021.2008306 上在线获取。“我一直责怪自己没有花足够的时间陪他。现在与他的沟通不同了。看着他在舞台上,他很高兴,有了目标。”(加里,男性)。