J Med Libr Assoc. 2021 Oct 1;109(4):667-671. doi: 10.5195/jmla.2021.1078.
Few electronic resources are available for new mothers with concerns about changes in their pelvic floor following childbirth. Patients may struggle when seeking authoritative information regarding pelvic floor conditions online given the sensitivity of the topic as well as the inadvertent connection to obscene or demeaning content found online. A health sciences librarian partnered with the Motherhood and Pelvic Health Study, an interdisciplinary research group, to provide expert searching skills for a particularly challenging health condition that patients struggle to find useful information on.
A custom rubric was developed to evaluate existing information products, which included criteria for cultural sensitivity, conflicts of interest, and other red flags. This evaluation process enabled the research team to identify top-tier evidence-based materials that were culturally congruent. This collaborative evaluation process led to the creation of a web-based toolkit resource for new mothers concerned about changes in their pelvic floor. The toolkit connects women to pertinent information on a national health organization's patient portal, supplemented by videos created by the team to serve as models of communication for women and health care providers.
When developing a web-based resource, health sciences libraries can partner with research teams to find, evaluate, and disseminate information. Culturally congruent toolkits such as this one can improve access to health information and lead to improved health outcomes. To ensure that the information highlighted in toolkits is both culturally congruent and authoritative, research teams should form advisory committees and partner with relevant professional medical associations.
对于分娩后对盆底功能变化有担忧的新妈妈来说,可用的电子资源很少。由于该主题的敏感性以及网上可能会无意中连接到淫秽或贬低内容,患者在网上寻找有关盆底状况的权威信息时可能会感到困难。一位健康科学图书馆员与跨学科研究小组“母亲与盆底健康研究”合作,为一种特别具有挑战性的健康状况提供专家搜索技能,患者在寻找有用信息时会遇到这种情况。
制定了一个自定义的评分标准来评估现有的信息产品,其中包括文化敏感性、利益冲突和其他警示标志的标准。该评估过程使研究小组能够识别出具有文化一致性的顶级循证材料。这一协作评估过程导致为对盆底功能变化有担忧的新妈妈创建了一个基于网络的工具包资源。该工具包将女性与国家卫生组织患者门户上的相关信息联系起来,并补充了由团队创建的视频,作为女性和医疗保健提供者沟通的典范。
在开发基于网络的资源时,健康科学图书馆可以与研究团队合作,寻找、评估和传播信息。像这样具有文化一致性的工具包可以改善健康信息的获取,并改善健康结果。为了确保工具包中突出显示的信息既具有文化一致性又具有权威性,研究团队应成立咨询委员会并与相关专业医疗协会合作。