De Proost Lien, Geurtzen Rosa, Ismaili M'hamdi Hafez, Reiss I K M Irwin, Steegers E A P Eric, Joanne Verweij E J
Department of Medical Ethics, Philosophy and History of Medicine, Erasmus MC, Rotterdam, The Netherlands; Department of Neonatology, Erasmus MC, Rotterdam, The Netherlands; Department of Obstetrics & Gynecology, Erasmus MC, Rotterdam The Netherlands.
Department of Neonatology, Radboud University Medical Center, Amalia Children's Hospital, Nijmegen, The Netherlands.
Patient Educ Couns. 2022 Jul;105(7):1743-1760. doi: 10.1016/j.pec.2021.10.033. Epub 2021 Nov 6.
To explore, based on the existing body of literature, main characteristics of prenatal counseling for parents at risk for extreme preterm birth.
A scoping review was conducted searching Embase, Medline, Web of Science, Cochrane, CINAHL, and Google Scholar.
46 articles were included. 27 of them were published between 2017 and 2021. More than half of them were conducted in the United States of America. Many different study designs were represented. The following characteristics were identified: personalization, parent-physician relationships, shared decision-making, physician bias, emotions, anxiety, psychosocial factors, parental values, religion, spirituality, hope, quality of life, and uncertainty.
Parental values are mentioned in 37 of the included articles. Besides this, uncertainty, shared decision-making, and emotions are most frequently mentioned in the literature. However, reflecting on the interrelation between all characteristics leads us to conclude that personalization is the most notable trend in prenatal counseling practices. More and more, it is valued to adjust the counseling to the parent(s).
This scoping review emphasizes again the complexity of prenatal counseling at the limit of viability. It offers an exploration of how it is currently approached, and reflects on how future research can contribute to optimizing it.
基于现有文献，探讨极早产风险父母产前咨询的主要特征。
进行了一项范围综述，检索了Embase、Medline、Web of Science、Cochrane、CINAHL和谷歌学术。
纳入46篇文章。其中27篇发表于2017年至2021年之间。超过半数的研究在美国开展。研究设计多样。确定了以下特征：个性化、医患关系、共同决策、医生偏见、情绪、焦虑、心理社会因素、父母价值观、宗教、精神性、希望、生活质量和不确定性。
纳入的文章中有37篇提到了父母价值观。除此之外，文献中最常提及的是不确定性、共同决策和情绪。然而，思考所有特征之间的相互关系后我们得出结论，个性化是产前咨询实践中最显著的趋势。根据父母情况调整咨询越来越受到重视。
这项范围综述再次强调了 viability极限下产前咨询的复杂性。它探讨了目前的处理方式，并思考了未来研究如何有助于优化咨询。
