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新生儿重症监护室中的不确定性:一项用于构建定制分类法的范围综述

Uncertainties in the NICU: a scoping review to inform a tailored taxonomy.

作者信息

Krick Jeanne A, Rholl Erin L, Callahan Katherine Press, Harris Kelly W, Weiss Elliott Mark

机构信息

Department of Pediatrics, Brooke Army Medical Center, San Antonio, TX, USA.

Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.

出版信息

J Perinatol. 2025 Apr 16. doi: 10.1038/s41372-025-02299-w.

DOI:10.1038/s41372-025-02299-w
PMID:40240841
Abstract

Our objective was to conduct a scoping review of the literature to inform a modified taxonomy of uncertainty in the NICU, for the purpose of better identifying and defining different experiences of uncertainty for parents and medical teams. We conducted a systematic literature search for studies examining an element of uncertainty in the NICU. Data extraction was guided by Han's taxonomy of uncertainty and a thematic analysis informed the modified taxonomy. We included 55 articles, leading to three major alterations of Han's taxonomy. We believe this modified taxonomy of uncertainty in the NICU provides a more nuanced understanding of the specific uncertainties faced in this context, leading to a better understanding of the different needs of families and medical teams. It also highlights the need for targeted strategies to further explore and manage these uncertainties.

摘要

我们的目标是对文献进行范围综述,以形成新生儿重症监护病房(NICU)不确定性的修订分类法,目的是更好地识别和定义家长及医疗团队不同的不确定性体验。我们对研究NICU中不确定性因素的研究进行了系统的文献检索。数据提取以韩氏不确定性分类法为指导,主题分析为修订分类法提供了依据。我们纳入了55篇文章,对韩氏分类法进行了三项主要修订。我们认为,这种NICU不确定性的修订分类法能更细致地理解该背景下所面临的特定不确定性,从而更好地理解家庭和医疗团队的不同需求。它还凸显了制定针对性策略以进一步探索和管理这些不确定性的必要性。

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J Perinatol. 2025 Apr 16. doi: 10.1038/s41372-025-02299-w.
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本文引用的文献

1
Uncertainty and the NICU Experience: A Qualitative Evaluation of Family and Provider Perspectives.不确定性与新生儿重症监护室经历:对家庭和医护人员观点的定性评估
Children (Basel). 2023 Oct 27;10(11):1745. doi: 10.3390/children10111745.
2
Mobile applications to support parents in the transition from neonatal intensive care unit to home: a narrative review.支持父母从新生儿重症监护病房过渡到家庭的移动应用程序:一项叙述性综述。
Mhealth. 2023 Jul 12;9:27. doi: 10.21037/mhealth-23-10. eCollection 2023.
3
Defining Outcomes that Matter Most to Parents: Challenging and Important Work.
确定对父母最重要的结果:具有挑战性且重要的工作。
J Pediatr. 2023 Sep;260:113567. doi: 10.1016/j.jpeds.2023.113567. Epub 2023 Jun 14.
4
Ranking Future Outcomes Most Important to Parents of Children with Bronchopulmonary Dysplasia.对患有支气管肺发育不良的儿童的父母来说,未来结果的重要性排序。
J Pediatr. 2023 Aug;259:113455. doi: 10.1016/j.jpeds.2023.113455. Epub 2023 May 10.
5
Uncertainty and probability in neonatal end-of-life decision-making: analysing real-time conversations between healthcare professionals and families of critically ill newborns.新生儿生命末期决策中的不确定性和概率:分析重症新生儿的医护人员和家庭之间的实时对话。
BMC Palliat Care. 2023 May 3;22(1):53. doi: 10.1186/s12904-023-01170-z.
6
"I'll Be There": Informal and Formal Support Systems and Mothers' Psychological Distress during NICU Hospitalization.“我会在那里”:新生儿重症监护病房住院期间的非正式和正式支持系统与母亲的心理困扰
Children (Basel). 2022 Dec 13;9(12):1958. doi: 10.3390/children9121958.
7
Uncertainty and perinatal post-traumatic stress disorder in the neonatal intensive care unit.新生儿重症监护病房的不确定性和围产期创伤后应激障碍。
Res Nurs Health. 2022 Dec;45(6):717-732. doi: 10.1002/nur.22261. Epub 2022 Sep 4.
8
Scoping review of interventions to support families with preterm infants post-NICU discharge.支持早产儿家庭在新生儿重症监护病房出院后的干预措施的范围综述。
J Pediatr Nurs. 2022 Nov-Dec;67:e135-e149. doi: 10.1016/j.pedn.2022.08.014. Epub 2022 Aug 28.
9
Family caregivers' experiences of caring for neonates undergoing enterostomy in China: A qualitative study.中国家庭照顾者照顾行肠造口新生儿的体验:一项定性研究。
Nurs Open. 2023 Feb;10(2):817-827. doi: 10.1002/nop2.1350. Epub 2022 Aug 30.
10
Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty.重新构想围产期姑息治疗:在不确定性面前,支持扮演更广泛的角色。
J Palliat Care. 2022 Oct;37(4):476-479. doi: 10.1177/08258597221098496. Epub 2022 Jun 3.