Noordwest Ziekenhuisgroep, Alkmaar, The Netherlands
UWV, Amsterdam, The Netherlands.
BMJ Open. 2021 Dec 6;11(12):e053370. doi: 10.1136/bmjopen-2021-053370.
In this paper, we challenge the premise that patients are capable of accurately predicting their emotional response or quality of life in anticipation of health changes. Our goal was to systematically review the published empirical evidence related to the reliability of affective forecasting in the context of medical conditions.
Scoping review.
We conducted a search string using both simple search terms as well as MeSH terms and searched the electronic databases of PubMed, Embase, CINAHL and Cochrane up to April 2021.
We initially selected 5726 articles. Empirical studies reporting on predicted and/or observed emotions or quality of life concerning deterioration, improvement in health or chronic illnesses were included. Furthermore, empirical studies of healthy individuals predicting emotional response or quality of life compared with patients reflecting on emotions or quality of life concerning deterioration or improvement in health or chronic illnesses were also included. Studies on healthy participants, psychiatric patients and non-English articles were excluded.
7 articles were included in this review. We found that patients generally tend to systematically exaggerate both anticipated happiness and sorrow/grief after health improvement and deterioration, respectively.
Patients are less adept in predicting emotional response or quality of life regarding to health changes than we are inclined to assume. We discuss several biases which could explain this phenomenon. Our findings are relevant in the context of treatment decisions, advanced care planning and advanced care directives.
在本文中,我们对患者能够准确预测健康变化预期的情绪反应或生活质量这一前提提出了质疑。我们的目标是系统地回顾与医疗条件下情感预测的可靠性相关的已发表的实证证据。
范围综述。
我们使用简单的搜索词和 MeSH 术语进行了搜索字符串,并在 2021 年 4 月之前在 PubMed、Embase、CINAHL 和 Cochrane 电子数据库中进行了搜索。
我们最初选择了 5726 篇文章。纳入了报告有关健康恶化、改善或慢性疾病的预测和/或观察到的情绪或生活质量的实证研究。此外,还纳入了健康个体预测情绪反应或生活质量与反映健康恶化或改善的情绪或生活质量的患者的实证研究,以及关于健康参与者、精神科患者和非英语文章的研究。
本综述纳入了 7 篇文章。我们发现,患者通常倾向于分别在健康改善和恶化后系统地夸大预期的幸福感和悲伤/悲伤。
患者在预测健康变化相关的情绪反应或生活质量方面不如我们倾向于假设的那样熟练。我们讨论了几个可以解释这一现象的偏见。我们的研究结果在治疗决策、高级护理计划和高级护理指令方面具有相关性。