Division of Pediatric Rheumatology, 23335Loma Linda University Medical Center, Loma Linda, CA, USA.
25989University of Texas Southwestern Medical School, Dallas, TX, USA.
Lupus. 2021 Dec;30(14):2221-2229. doi: 10.1177/09612033211061057. Epub 2021 Dec 7.
Coping mechanisms and emotional regulation are important contributors to psychosocial health during stressful life events. We sought to describe the coping and emotional responses of persons with childhood-onset systemic lupus erythematosus during the transfer from pediatric to adult healthcare.
Semi-structured in-depth one-on-one interviews were conducted with 13 young women aged 18-24 of minority background who had transferred to adult care in a public hospital system. Thematic analysis was used to identify themes motifs from the data.
Participants described the use of (1) problem-focused coping such as the use of clear communication and self-education, (2) adaptive emotion-focused coping such as cognitive reframing and acceptance, (3) social coping including support-seeking, (4) meaning-making coping including positive religious framing and viewing events as learning opportunities for growth, and (5) disengaged coping including denial and social isolation. A range of emotional responses associated with the transfer were described including fear, anger, loss, and feelings of empowerment and excitement.
Effective coping and emotional regulation are modifiable factors that may impact transfer-related outcomes and psychosocial health. Addressing coping mechanisms is relevant to the optimized transfer to adult care.
应对机制和情绪调节是应对生活压力事件时心理社会健康的重要因素。我们旨在描述儿童期起病的系统性红斑狼疮患者从儿科向成人医疗保健过渡期间的应对和情绪反应。
对 13 名少数民族背景的 18-24 岁年轻女性进行了半结构化的深入一对一访谈，这些女性已转入公立医院系统的成人护理。使用主题分析从数据中识别主题模式。
参与者描述了使用（1）问题焦点应对，例如使用清晰的沟通和自我教育，（2）适应性情绪焦点应对，例如认知重构和接受，（3）社会应对，包括寻求支持，（4）意义应对，包括积极的宗教框架和将事件视为成长的学习机会，以及（5）脱离应对，包括否认和社会孤立。描述了与转移相关的一系列情绪反应，包括恐惧、愤怒、失落以及赋权和兴奋的感觉。
有效的应对和情绪调节是可改变的因素，可能会影响与转移相关的结果和心理社会健康。应对机制的处理与优化向成人护理的转移有关。
