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Caregiver Burden and Quality of Life among Family Caregivers of Cancer Patients on Chemotherapy: A Prospective Observational Study.癌症化疗患者家庭照顾者的照顾负担与生活质量:一项前瞻性观察研究
Indian J Palliat Care. 2021 Jan-Mar;27(1):109-112. doi: 10.4103/IJPC.IJPC_180_20. Epub 2021 Feb 17.
2
Perception and Quality of Life in Family Caregivers of Cancer Patients.癌症患者家庭照顾者的认知与生活质量
Indian J Palliat Care. 2020 Oct-Dec;26(4):415-420. doi: 10.4103/IJPC.IJPC_225_19. Epub 2020 Nov 19.
3
Physical recovery in the first six months following oesophago-gastric cancer surgery. Identifying rehabilitative needs: a qualitative interview study.食管胃结合部癌手术后半年内的身体恢复。确定康复需求:定性访谈研究。
Disabil Rehabil. 2021 May;43(10):1396-1403. doi: 10.1080/09638288.2019.1663946. Epub 2019 Sep 16.
4
Unmet needs in the physical and daily living domain mediates the influence of symptom experience on the quality of life of gastric cancer patients.未满足的身体和日常生活领域需求在症状体验对胃癌患者生活质量的影响中起中介作用。
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To Tell or Not: The Chinese Doctors' Dilemma on Disclosure of a Cancer Diagnosis to the Patient.告知还是不告知:中国医生在向患者披露癌症诊断时的两难困境。
Iran J Public Health. 2018 Nov;47(11):1773-1774.
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Patient Prefer Adherence. 2018 Sep 3;12:1659-1666. doi: 10.2147/PPA.S176651. eCollection 2018.
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The Unmet Needs of the Family Caregivers of Patients with Cancer Visiting a Referral Hospital in Iran.伊朗一家转诊医院中癌症患者家庭照顾者未被满足的需求
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从家庭照顾者、患者及医疗服务提供者视角看家庭照顾者照顾胃癌患者面临的挑战:一项定性研究

Challenges to Family Caregivers in Caring for Gastric Cancer Patients from Perspectives of Family Caregivers, Patients, and Healthcare Providers: A Qualitative Study.

作者信息

Taleghani Fariba, Ehsani Maryam, Farzi Sedigheh, Farzi Saba, Adibi Peyman, Moladoost Azam, Shahriari Mohsen, Tabakhan Mahnaz

机构信息

Department of Adult Health Nursing, Nursing and Midwifery Care Research Center, Isfahan University of Medical Sciences, Isfahan, Iran.

Department of Medical and Surgical Nursing, Nursing Care Research Center, Iran University of Medical Sciences, Tehran, Iran.

出版信息

Indian J Palliat Care. 2021 Oct-Dec;27(4):521-529. doi: 10.25259/IJPC_98_21. Epub 2021 Oct 28.

DOI:10.25259/IJPC_98_21
PMID:34898947
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8655636/
Abstract

OBJECTIVES

Cancer affects both patients and their families. Sometimes, the effects of cancer on families are greater than its effects on patients. Family caregivers play significant roles in care for patients with cancer. Nonetheless, the data on the challenges they face in caregiving are limited. The present study explored the perspectives of patients with gastric cancer (GC), their family caregivers, and healthcare providers regarding family caregivers' challenges in caregiving to patients with GC.

MATERIALS AND METHODS

This descriptive exploratory qualitative study was conducted in 2019-2020. Six GC patients, six family caregivers, three physicians, and five nurses took part for a total of twenty participants. Purposive sampling was performed, and data were collected through semi-structured interviews and continued up to data saturation. Conventional content analysis was used for data analysis.

RESULTS

Caregivers' challenges in caregiving to patients with GC were grouped into five main categories, namely, lengthy process of GC diagnosis, delivery of bad news, management of physical symptoms, altered relationships, and psychological consequences, and 14 subcategories.

CONCLUSION

Educating the public about the primary symptoms of GC and the importance of timely seeking medical care as well as using culturally appropriate protocols for delivering bad news is recommended. Empowering family caregivers for the effective management of GC symptoms and caregiving-related challenges are also recommended to reduce their caregiver burden.

摘要

目的

癌症会影响患者及其家人。有时,癌症对家庭的影响大于对患者的影响。家庭照顾者在癌症患者的护理中发挥着重要作用。然而,关于他们在护理中面临挑战的数据有限。本研究探讨了胃癌(GC)患者、其家庭照顾者以及医疗服务提供者对家庭照顾者在照顾GC患者过程中所面临挑战的看法。

材料与方法

这项描述性探索性定性研究于2019年至2020年进行。六名GC患者、六名家庭照顾者、三名医生和五名护士参与,共二十名参与者。采用目的抽样法,通过半结构化访谈收集数据,直至数据饱和。采用常规内容分析法进行数据分析。

结果

家庭照顾者在照顾GC患者过程中面临的挑战分为五大类,即GC诊断过程漫长、坏消息告知、身体症状管理、关系改变和心理影响,以及14个子类别。

结论

建议向公众宣传GC的主要症状以及及时就医的重要性,并采用符合文化习惯的方案告知坏消息。还建议增强家庭照顾者有效管理GC症状和与照顾相关挑战的能力,以减轻他们的照顾负担。