Faculty of Health, Arts and Design, 3783Swinburne University of Technology, Hawthorn, VIC, Australia.
Centre of Urban Transitions, 3783Swinburne University of Technology, Hawthorn, VIC, Australia.
Qual Health Res. 2022 Jan;32(2):267-278. doi: 10.1177/10497323211050362. Epub 2021 Dec 14.
Autistic adults have higher health needs compared to most, yet they continue to experience barriers to accessing appropriate healthcare. Presently, no qualitative research exists exploring these barriers which impact overall physical and mental health. We conducted a qualitative analysis in Victoria (Australia) of the perceived experiences of healthcare access for autistic adults ( = 9) and primary caregivers of autistic adults ( = 7). Specifically, a three-staged phenomenological approach was applied involving: (i) a communicative checklist, (ii) a health status survey and (iii) face-to-face interviews. Elements such as support, responsibilities and protective factors exhibited by caregivers, may impact healthcare access for autistic adults. Results indicate the need for further research exploring interdependent factors that impact healthcare access by caregivers, so evidence-based interventions can be developed to support caregivers in the future.
自闭症成年人的健康需求比大多数人更高，但他们仍然面临获得适当医疗保健的障碍。目前，尚无定性研究探讨这些影响整体身心健康的障碍。我们在澳大利亚维多利亚州对自闭症成年人（n=9）和自闭症成年人的主要照顾者（n=7）的医疗保健获取感知经验进行了定性分析。具体而言，采用了三阶段现象学方法，包括：（i）交流检查表，（ii）健康状况调查和（iii）面对面访谈。照顾者表现出的支持、责任和保护因素等元素可能会影响自闭症成年人的医疗保健获取。结果表明，需要进一步研究探索影响照顾者医疗保健获取的相互依存因素，以便未来能够制定基于证据的干预措施来支持照顾者。
