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炎症性肠病青少年过渡准备评估问卷的轨迹。

Trajectories of the Transition Readiness Assessment Questionnaire Among Youth With Inflammatory Bowel Disease.

机构信息

Nationwide Children's Hospital.

The Ohio State University College of Medicine, Columbus, OH.

出版信息

J Clin Gastroenterol. 2022 Oct 1;56(9):805-809. doi: 10.1097/MCG.0000000000001644. Epub 2021 Dec 15.

DOI:10.1097/MCG.0000000000001644
PMID:34907925
Abstract

OBJECTIVE

The objective of this study was to describe in detail the trends of the Transition Readiness Assessment Questionnaire (TRAQ-20) with respect to patient age and gender among a cohort of 655 youth with inflammatory bowel disease (IBD) to enhance the tool's utility in clinical and research settings.

MATERIALS AND METHODS

All participants in the Crohn's and Colitis Foundation's IBD Partners and IBD Partners Kids and Teens Cohorts ages 12 to 21 who completed the TRAQ-20 at least once were included. We computed centile scores for the TRAQ-20 and applied Kernel regression to generate curves. We computed mean scores for each TRAQ-20 domain by age for the overall cohort and stratified by gender.

RESULTS

TRAQ-20 scores generally increase with age. Males have a steeper trajectory from ages 17 to 19 compared with females. By age 21, median overall TRAQ-20 scores for women and men were 4.4 and 4.7, respectively. The "Talking with Providers" domain of the TRAQ-20 had high scores throughout the age range of the cohort, while others had lower scores in younger ages and higher scores in older ages. All TRAQ-20 domains had mean scores of 4 or greater (out of a possible 5) among 21-year-olds.

CONCLUSIONS

TRAQ-20 scores increase with age. The rate of increase varies by gender. Rates of increase also differ across domains. The use of transition readiness growth curves can help providers and researchers identify patients who are not achieving expected levels of transition readiness and determine the level of transition readiness that a patient much achieve before transfer to adult care.

摘要

目的

本研究旨在详细描述炎症性肠病(IBD)患者队列中 655 名青少年患者的过渡准备评估问卷(TRAQ-20)随患者年龄和性别变化的趋势,以增强该工具在临床和研究环境中的实用性。

材料和方法

纳入了克罗恩病和结肠炎基金会的 IBD 合作伙伴和 IBD 合作伙伴儿童和青少年队列中年龄在 12 至 21 岁之间、至少完成过一次 TRAQ-20 的所有参与者。我们计算了 TRAQ-20 的百分位数得分,并应用核回归生成曲线。我们计算了整个队列中各年龄组 TRAQ-20 各领域的平均得分,并按性别分层。

结果

TRAQ-20 评分通常随年龄增长而增加。与女性相比,男性在 17 至 19 岁之间的轨迹更为陡峭。到 21 岁时,女性和男性的 TRAQ-20 总中位数分别为 4.4 和 4.7。TRAQ-20 的“与提供者交谈”领域在整个队列年龄范围内得分较高,而其他领域在年龄较小时得分较低,在年龄较大时得分较高。在 21 岁的人群中,所有 TRAQ-20 领域的平均得分均为 4 或更高(满分 5 分)。

结论

TRAQ-20 评分随年龄增长而增加。性别差异导致增加率不同。不同领域的增长率也不同。使用过渡准备就绪增长曲线可以帮助提供者和研究人员识别未达到预期过渡准备就绪水平的患者,并确定患者在转移至成人护理前必须达到的过渡准备就绪水平。

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