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开发一个用于治疗严重贝尔氏面瘫的开源免费面部康复网站:一项关于用户体验和患者对 MEPP 网站依从性的自身对照研究。

Development of an open-source and free facial rehabilitation website for severe bell's palsy: a within-subject study on user experience and patient's compliance with the MEPP-website.

机构信息

Hôpital Maisonneuve-Rosemont, Montréal, Canada.

Centre de Recherche du Centre Intégré Universitaire de Santé et Services Sociaux du Nord-de-l'île-de-Montréal, Montréal, Canada.

出版信息

Disabil Rehabil. 2022 Dec;44(26):8357-8366. doi: 10.1080/09638288.2021.2012846. Epub 2021 Dec 17.

Abstract

PURPOSE

An open source and free website called Mirror Effect Plus Protocol (MEPP)-website was developed with features to diminish cognitive load and support motor learning during facial exercises. Assessing patient's perceptions is crucial when developing rehabilitation tools because patients' willingness to use the tools strongly affect engagement in the rehabilitation process. This study compared clinicians' and patients' user experience with the MEPP-website versus a hobby-designed website.

MATERIALS AND METHODS

Ten patients with acute severe Bell's palsy and five clinicians were enrolled in a within-subject and crossover design. User experience was assessed with the Modular evaluation of Components of User Experience questionnaire. Wilcoxon-Signed-Rank test analysed user experience, and descriptive analyses explored the order effect. Therapeutic compliance was verified for the MEPP-website by an integrated feature. Clinicians' descriptive statistics and subjective observations were also reported.

RESULTS

Both patients and clinicians demonstrated a preference for the MEPP-website, whether they used it first or second. Despite this preference, compliance with the MEPP-website was reduced, although it tended to be better when used first.

CONCLUSIONS

MEPP- website during facial rehabilitation improved user experience. Better user experience likely optimizes how patients perform and facilitate their exercises. Factors affecting compliance with facial rehabilitation remain to be addressed.Implications for rehabilitationRecent data suggests that mirror effect therapy combined with drug therapy supports the recovery of severe Bell's Palsy.The specialized Mirror Effect Plus Protocol (MEPP)- website is a clinical computer-based tool developed to promote patients' motor learning and diminish cognitive load during mirror therapy.The MEPP-website increase clinicians' accessibility to a specialized facial rehabilitation tool for mirror therapy.Clinicians using the MEPP-website can also objectively and easily measure compliance to facial therapy with the MEPP-website.

摘要

目的

开发了一个名为 Mirror Effect Plus Protocol(MEPP)-网站的开源免费网站,具有减轻认知负担和支持面部锻炼中运动学习的功能。在开发康复工具时评估患者的感知至关重要,因为患者使用工具的意愿强烈影响他们参与康复过程的程度。本研究比较了临床医生和患者对 MEPP 网站与业余设计网站的用户体验。

材料和方法

10 名急性重度贝尔麻痹患者和 5 名临床医生参与了一项within-subject 和 crossover 设计。使用模块化用户体验组件评估问卷评估用户体验。Wilcoxon-Signed-Rank 检验分析用户体验,描述性分析探索了顺序效应。通过集成功能验证了 MEPP 网站的治疗依从性。还报告了临床医生的描述性统计和主观观察。

结果

无论是先使用 MEPP 网站还是后使用 MEPP 网站,患者和临床医生都表现出对 MEPP 网站的偏好。尽管有这种偏好,但 MEPP 网站的依从性降低了,尽管先使用时往往更好。

结论

MEPP 网站在面部康复中改善了用户体验。更好的用户体验可能会优化患者的表现并促进他们的锻炼。影响面部康复依从性的因素仍有待解决。

康复意义

最近的数据表明,镜像效应疗法结合药物治疗支持严重贝尔麻痹的恢复。专门的 Mirror Effect Plus Protocol(MEPP)-网站是一种临床计算机工具,旨在促进患者的运动学习并减轻镜像治疗中的认知负担。MEPP-网站增加了临床医生获得专门用于镜像疗法的面部康复工具的机会。使用 MEPP-网站的临床医生还可以使用 MEPP-网站客观且轻松地测量面部治疗的依从性。

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