School of Nursing, Yangzhou University, Yangzhou, China.
Jiangsu Key Laboratory of Zoonosis, Yangzhou University, Yangzhou, China.
J Adolesc Young Adult Oncol. 2022 Oct;11(5):486-492. doi: 10.1089/jayao.2021.0124. Epub 2021 Dec 27.
Culture influences whether cancer patients disclose their disease diagnosis to others. Understanding Chinese young female breast cancer survivors (BCSs)' experiences and perspectives on disclosure could play a vital role in clinical nursing. This study explores the experiences of Chinese young female BCSs with disease disclosure and describes the reasons for their choices. Using the tenets of phenomenological research and a purpose sampling method, semistructured interviews were conducted with 31 BCSs from February to April 2021. Colaizzi's analysis method was performed with NVivo software to develop common themes from the data. From the analysis of the interviews of the 31 participants, three main themes were identified: (1) disclosure-to whom, including core family members, close friends, roommates, and employers; (2) disclosure to achieve positive outcomes, including: to gain social support, tell others to take precautions, obtain relevant information, and get permission to work flexibly, and (3) nondisclosure to avoid negative outcomes, including fear of discrimination and stigmatization, strengthen the role of the patient, bring excessive burden, and fear of excessive compassion. For young women diagnosed with breast cancer in China, it is a very complicated matter whether they choose to disclose their diagnosis to others. While disclosure can bring many benefits, it is important to look at the reasons why these women are concealing their diagnosis.
文化会影响癌症患者是否向他人透露自己的疾病诊断。了解中国年轻女性乳腺癌幸存者(BCS)对披露的经历和看法,对于临床护理至关重要。本研究探讨了中国年轻女性 BCS 披露疾病的经历,并描述了她们选择披露的原因。本研究采用现象学研究的原则和目的抽样法,于 2021 年 2 月至 4 月对 31 名 BCS 进行了半结构式访谈。使用 NVivo 软件对 Colaizzi 的分析方法进行分析,从数据中得出共同主题。通过对 31 名参与者访谈的分析,确定了三个主要主题:(1)向谁披露,包括核心家庭成员、亲密朋友、室友和雇主;(2)披露以实现积极的结果,包括获得社会支持、告知他人预防、获取相关信息和获得灵活工作许可;(3)不披露以避免负面结果,包括担心歧视和污名化、强化患者角色、带来过多负担和担心过度同情。对于在中国被诊断出乳腺癌的年轻女性来说,是否选择向他人透露自己的诊断是一个非常复杂的问题。虽然披露可以带来很多好处,但重要的是要了解这些女性隐瞒诊断的原因。