不尽人意:运用照片抽取法对直肠癌幸存者的情绪和应对策略进行的研究
It's not fine: A photo-elicitation study of rectal cancer survivors' emotions and coping strategies.
机构信息
Department of Surgery, University of Michigan, Ann Arbor, MI.
Center for Healthcare Outcomes and Policy, University of Michigan, Ann Arbor, MI.
出版信息
Surgery. 2022 Jun;171(6):1480-1485. doi: 10.1016/j.surg.2021.10.067. Epub 2021 Dec 31.
BACKGROUND
Comprehensive cancer care includes supporting the psychological health of survivors who are at high risk of distress. However, little is known about the emotional experiences of rectal cancer survivors specifically. We sought to explore psychological well-being and coping strategies utilized by rectal cancer survivors.
METHODS
Twenty rectal cancer survivors shared photographs of their post-treatment experiences. In follow-up interviews, participants discussed photographs' meanings and emotional experiences during their cancer journey. Transcribed interviews were analyzed using iterative steps of inductive thematic analysis.
RESULTS
Emotions ranged from sadness to anxiety and fear of cancer recurrence. Coping mechanisms were grouped into 3 categories: (1) seeking support and information; (2) focus on attitudes and perspectives; and (3) distancing strategies.
CONCLUSION
Our results highlight the persistent psychological impact of rectal cancer and need for additional support for survivors. Providers may help temper patients' fear of recurrence by explicitly discussing prognosis and risk of recurrence. Although multidisciplinary survivorship clinics are ideal, all cancer care providers and primary care physicians should feel empowered to screen for psychological distress and refer patients to appropriate resources when needed.
背景
综合癌症护理包括支持处于高压力风险的幸存者的心理健康。然而,对于直肠癌幸存者的情绪体验知之甚少。我们旨在探讨直肠癌幸存者的心理健康和应对策略。
方法
20 名直肠癌幸存者分享了他们治疗后的经历照片。在后续访谈中,参与者讨论了照片的含义以及他们在癌症治疗过程中的情绪体验。使用归纳主题分析的迭代步骤对转录的访谈进行分析。
结果
情绪范围从悲伤到焦虑和对癌症复发的恐惧。应对机制分为 3 类:(1)寻求支持和信息;(2)关注态度和观点;(3)距离策略。
结论
我们的研究结果突出了直肠癌的持续心理影响,需要为幸存者提供更多支持。提供者可以通过明确讨论预后和复发风险来帮助减轻患者对复发的恐惧。尽管多学科的生存诊所是理想的,但所有癌症护理提供者和初级保健医生都应该有能力筛查心理困扰,并在需要时将患者转介到适当的资源。