Department of Surgery, University of Michigan, Ann Arbor, MI, USA.
Center for Healthcare Outcomes and Policy, University of Michigan, Ann Arbor, MI, USA.
Ann Surg Oncol. 2023 Jun;30(6):3530-3537. doi: 10.1245/s10434-022-13042-6. Epub 2023 Feb 27.
Rectal cancer survivors experience unique, prolonged posttherapy symptoms. Previous data indicate that providers are not skilled at identifying the most pertinent rectal cancer survivorship issues. Consequently, survivorship care is incomplete with the majority of rectal cancer survivors reporting at least one unmet posttherapy need.
This photo-elicitation study combines participant-submitted photographs and minimally structured qualitative interviews to explore one's lived experiences. Twenty rectal cancer survivors from a single tertiary canter provided photographs representative of their life after rectal cancer therapy. The iterative steps informed by inductive thematic analysis were used to analyze the transcribed interviews.
Rectal cancer survivors had several recommendations to improve their survivorship care, which fell into three major themes: (1) informational needs (e.g., more details about posttherapy side effects); (2) continued multidisciplinary follow up care (e.g., dietary support); and (3) suggestions for support services (e.g., subsidized bowel altering medications and ostomy supplies).
Rectal cancer survivors desired more detailed and individualized information, access to longitudinal multidisciplinary follow-up care, and resources to ease the burdens of daily life. These needs may be met through the restructuring of rectal cancer survivorship care to include disease surveillance, symptom management, and support services. As screening and therapy continues to improve, providers must continue to screen and to provide services that address the physical and psychosocial needs of rectal cancer survivors.
直肠癌幸存者会经历独特且长期的治疗后症状。先前的数据表明，医护人员并不擅长识别与直肠癌生存相关的最关键问题。因此，大多数直肠癌幸存者的生存护理并不完善，他们至少报告有一项未满足的治疗后需求。
本照片启发研究结合了参与者提交的照片和最小结构的定性访谈，以探索一个人的生活经历。来自单一三级中心的 20 名直肠癌幸存者提供了代表他们直肠癌治疗后生活的照片。转录访谈的分析采用了基于归纳主题分析的迭代步骤。
直肠癌幸存者对改善生存护理有一些建议，这些建议分为三个主要主题：（1）信息需求（例如，更多关于治疗后副作用的详细信息）；（2）持续的多学科随访护理（例如，饮食支持）；（3）支持服务的建议（例如，补贴肠道改变药物和造口用品）。
直肠癌幸存者希望获得更详细和个性化的信息、获得长期多学科随访护理以及缓解日常生活负担的资源。这些需求可以通过重新构建直肠癌生存护理来满足，包括疾病监测、症状管理和支持服务。随着筛查和治疗的持续改善，医护人员必须继续筛查并提供服务，以满足直肠癌幸存者的身体和心理社会需求。
