Veteran Experience Center, Corporal Michael J. Crescenz Veterans Affairs Medical Center, Philadelphia, Pennsylvania, USA.
Center for Health Equity Research and Promotion, Corporal Michael J. Crescenz Veterans Affairs Medical Center, Philadelphia, Pennsylvania, USA.
J Am Geriatr Soc. 2022 Apr;70(4):1095-1105. doi: 10.1111/jgs.17632. Epub 2022 Jan 5.
Bereaved family members of racial/ethnic minority Veterans are less likely than families of White Veterans to provide favorable overall ratings of end-of-life (EOL) care quality; however, the underlying mechanisms for these differences have not been explored. The objective of this study was to examine whether a set of EOL care process measures mediated the association between Veteran race/ethnicity and bereaved families' overall rating of the quality of EOL care in VA medical centers (VAMCs).
A retrospective, cross-sectional analysis of linked Bereaved Family Survey (BFS), administrative and clinical data was conducted. The sample included 17,911 Veterans (mean age: 73.7; SD: 11.6) who died on an acute or intensive care unit across 121 VAMCs between October 2010 and September 2015. Mediation analyses were used to assess whether five care processes (potentially burdensome transitions, high-intensity EOL treatment, and the BFS factors of Care and Communication, Emotional and Spiritual Support, and Death Benefits) significantly affected the association between Veteran race/ethnicity and a poor/fair BFS overall rating.
Potentially burdensome transitions, high-intensity EOL treatment, and the three BFS factors of Care and Communication, Emotional and Spiritual Support, and Death Benefits did not substantially mediate the relationship between Veteran race/ethnicity and poor/fair overall ratings of quality of EOL care by bereaved family members.
The reasons underlying poorer ratings of quality of EOL care among bereaved family members of racial/ethnic minority Veterans remain largely unexplained. More research on identifying potential mechanisms, including experiences of racism, and the unique EOL care needs of racial and ethnic minority Veterans and their families is warranted.
与白人退伍军人的家属相比,少数族裔退伍军人的家属不太可能对临终关怀(EOL)护理质量给予整体好评;然而,这些差异的根本原因尚未得到探索。本研究的目的是检验一组 EOL 护理过程措施是否在退伍军人种族/族裔与 VA 医疗中心(VAMC)中丧亲家庭对 EOL 护理质量的整体评价之间的关联中起中介作用。
对 121 个 VAMC 中 10 月 2010 年至 9 月 2015 年间在急症或重症监护病房死亡的 17911 名退伍军人(平均年龄:73.7;SD:11.6)的 BFS(丧亲家庭调查)、行政和临床数据进行回顾性、横断面分析。中介分析用于评估五个护理过程(潜在负担过重的过渡、高强度的 EOL 治疗以及 BFS 因素的护理和沟通、情感和精神支持以及死亡福利)是否显著影响退伍军人种族/族裔与不良/公平 BFS 整体评分之间的关联。
潜在负担过重的过渡、高强度的 EOL 治疗以及护理和沟通、情感和精神支持以及死亡福利三个 BFS 因素并没有实质性地影响退伍军人种族/族裔与丧亲家庭成员对 EOL 护理质量的整体不良/公平评价之间的关系。
少数族裔退伍军人的家属对临终关怀质量评价较差的原因在很大程度上仍未得到解释。需要更多的研究来确定潜在的机制,包括种族主义的经历,以及少数族裔和族裔退伍军人及其家属独特的临终关怀需求。