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自闭症特定过渡资源研究方案(T-Res研究):开发一个灵活的资源包,以应对与2019冠状病毒病相关限制措施的放宽和/或解除。

Study protocol for autism specific transition resources (T-Res Study): developing a flexible resource package for dealing with the loosening and/or lifting of COVID-19 related restrictions.

作者信息

Smyth Sinéad, Mc Laughlin Nadine, Egan Cillian, Gurrin Cathal, Quinn Katie, McGarrell Maria, Devlin Sarah

机构信息

School of Psychology, Dublin City University, Glasnevin, Dublin 9, Ireland.

School of Computing, Dublin City University, Glasnevin, Dublin 9, Ireland.

出版信息

HRB Open Res. 2021 Jan 28;4:12. doi: 10.12688/hrbopenres.13155.1. eCollection 2021.

Abstract

Autism specific transition resources (T-Res) aims to develop a flexible resource package to support children and young people with a diagnosis of autism spectrum disorder (ASD), as well as their families and educators, during the loosening and/or lifting of coronavirus disease 2019 (COVID-19) related restrictions on movement. A secondary aim is to determine the current and long-term impacts of the COVID-19 related restrictions on the wellbeing of individuals with autism spectrum disorders and their parents/caregivers. Measuring and addressing the psychosocial impact of the COVID-19 pandemic and related restrictions in movement is of prime importance at this time.  The impacts of this crisis will be far reaching and many may not be realised for many years. The proposed research will focus on children and young people with a diagnosis of ASD, their families and educators.  The ASD population alone is sizable with 14,000 (or 1.55%) of students in schools holding a diagnosis. When parents, teachers, tutors and special needs assistants (SNAs) are also considered this is a considerable group. The proposed research has the potential to have impacts that are social, psychological, educational and economic. This will be achieved through development of an online transition package to guide parents and educators in preparing children and young people for the resumption of regular daily routines following the lifting of COVID-19 restrictions.  This resource will be developed based on the needs of families and young people, as measured through surveys, as well as expert consensus on the targets and means of intervention.  This ambitious project can be commenced quickly and is designed to produce outputs quickly, which will in turn be disseminated to key stakeholders.

摘要

自闭症特定过渡资源(T-Res)旨在开发一套灵活的资源包,以支持被诊断患有自闭症谱系障碍(ASD)的儿童和青少年及其家庭和教育工作者,帮助他们在2019年冠状病毒病(COVID-19)相关行动限制放松和/或解除期间做好准备。第二个目标是确定COVID-19相关限制对自闭症谱系障碍患者及其父母/照顾者福祉的当前和长期影响。在这个时候,衡量和应对COVID-19大流行及相关行动限制的心理社会影响至关重要。这场危机的影响将是深远的,许多影响可能在多年后才会显现出来。拟议的研究将聚焦于被诊断患有ASD的儿童和青少年、他们的家庭和教育工作者。仅ASD患者群体规模就很大,学校中有14000名(或1.55%)学生被诊断患有该病。若将家长、教师、辅导教师和特殊需求助理(SNA)也考虑在内,这是一个相当庞大的群体。拟议的研究有可能产生社会、心理、教育和经济方面的影响。这将通过开发一个在线过渡包来实现,以指导家长和教育工作者帮助儿童和青少年在COVID-19限制解除后恢复正常日常生活做好准备。该资源将根据通过调查所衡量的家庭和年轻人的需求以及关于干预目标和手段的专家共识来开发。这个雄心勃勃的项目可以迅速启动,并旨在迅速产生成果,这些成果将反过来传播给关键利益相关者。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4eeb/8686326/4a338cc5c2aa/hrbopenres-4-14275-g0000.jpg

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