Bristol Alycia A, Mata Aaron C, Mickens Melody, Dassel Kara B, Ellington Lee, Scammon Debra, Thompson Amber, Towsley Gail L, Utz Rebecca L, Terrill Alexandra L
College of Nursing, University of Utah, Salt Lake City, UT, USA.
Gerontology Interdisciplinary Program, University of Utah, Salt Lake City, UT, USA.
Gerontol Geriatr Med. 2021 Dec 17;7:23337214211060166. doi: 10.1177/23337214211060166. eCollection 2021 Jan-Dec.
One in five individuals in the United States provides care and support to ill, disabled, and aging family members in the home, leading to feelings of burden, stress, and poor health and well-being. Social support represents an important buffer for family caregivers that allows them to feel less isolated and more positive about their caregiving role. This sequential mixed-methods study aimed to examine the effect of the COVID-19 pandemic on family caregivers' social connections. Eighty-two caregivers completed a web-based survey which comprised of fixed-choice and open-ended questions. Survey data showed that the majority of caregivers (83%) reported an increase in stress and feeling lonely (77%) during the pandemic. Qualitative interviews with a subsample of caregivers (=27) further explored social connections during the pandemic. Three themes echoed the quantitative findings and centered around defining boundaries, intentionality in social interactions, and loss of social resources. Although caregivers were often strained by new or increased caregiving demands, many experienced positive changes such as feeling a deeper connection with the care-recipient. Findings from this study highlight the need for further consideration of the impact of social isolation on the well-being of caregivers.
在美国,五分之一的人在家中照顾生病、残疾和年迈的家庭成员,这导致了负担感、压力以及健康和幸福感不佳。社会支持对家庭照顾者来说是一个重要的缓冲,使他们感到不那么孤立,对自己的照顾角色更积极。这项顺序混合方法研究旨在探讨新冠疫情对家庭照顾者社会关系的影响。82名照顾者完成了一项基于网络的调查,该调查包括固定选择和开放式问题。调查数据显示,大多数照顾者(83%)报告在疫情期间压力增加,感到孤独的比例为77%。对一部分照顾者(n = 27)进行的定性访谈进一步探讨了疫情期间的社会关系。三个主题呼应了定量研究结果,围绕设定界限、社交互动中的意图以及社会资源的丧失。尽管照顾者常常因新的或增加的照顾需求而不堪重负,但许多人经历了积极的变化,比如与受照顾者的联系更加深厚。这项研究的结果凸显了需要进一步考虑社会隔离对照顾者幸福感的影响。